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. Author manuscript; available in PMC: 2016 May 1.
Published in final edited form as: Clin Immunol. 2015 Mar 8;158(1):29–34. doi: 10.1016/j.clim.2015.02.015

Table 1.

Reasons giving for declining to enroll infant in SCID screening study (959 of 2,796 mothers interviewed)

Reason Proportion of mothers endorsing
Mother is not interested. 25%
Baby looks healthy, so test not required. 23%
Mother needs more time to consider it. 10%
If test is voluntary, mother does not want it. 9%
Enrolling would be against traditional beliefs. 7%
Baby has had enough testing. 4%
Father or other family members are against it. 3%
Mother is not Navajo. 3%
(Uncommon reasons, each)* <2%
(No reason recorded) 11%
*

Examples: prior baby already tested, privacy concerns, does not think SCID is a serious problem.