. 2015 Apr 2;13:43. doi: 10.1186/s12955-015-0236-2

Table 3.

Descriptive statistics and reliability estimates on QoLISSY scale level for the US sample in comparison with the European sample (parents)

Parents	Descriptive statistics						Reliability
Parents	N	Mean	SD	Skewness	% Floor	% Ceiling	N	α	Split-half	ICC
Physical*	60	70.39	21.92	−0.50	1.7	10.0	59	0.91	0.86	0.89
US sample	60	70.39	21.92	−0.50	1.7	10.0	59	0.91	0.86	0.89
European sample	317	71.80	23.20	−0.76	1.3	13.2	310	0.86	0.86	0.84
Social*	60	65.92	26.02	−0.41	3.3	11.7	59	0.95	0.94	0.82
US sample	60	65.92	26.02	−0.41	3.3	11.7	59	0.95	0.94	0.82
European sample	313	69.41	25.24	-.60	0.3	12.5	308	0.90	0.88	0.84
Emotional*	59	68.05	22.11	−0.62	1.7	6.8	56	0.92	0.92	0.80
US sample	59	68.05	22.11	−0.62	1.7	6.8	56	0.92	0.92	0.80
European sample	315	68.50	22.90	−0.66	0.3	5.4	309	0.88	0.90	0.70
Coping	56	40.27	23.41	−0.10	10.7	1.8	54	0.91	0.84	0.55
US sample	56	40.27	23.41	−0.10	10.7	1.8	54	0.91	0.84	0.55
European sample	286	45.07	20.96	0.03	3.1	0.7	276	0.86	0.65	0.65
Beliefs	58	62.72	31.72	−0.36	1.7	20.7	58	0.94	0.94	0.78
US sample	58	62.72	31.72	−0.36	1.7	20.7	58	0.94	0.94	0.78
European sample	310	67.62	28.95	−0.62	2.6	22.3	310	0.90	0.89	0.72
Treatment	54	52.73	19.35	0.09	1.9	1.9	52	0.87	0.74	0.55
US sample	54	52.73	19.35	0.09	1.9	1.9	52	0.87	0.74	0.55
European sample	163	55.18	20.60	−0.23	0.6	1.2	154	0.88	0.78	0.74
Future US sample	59	73.73	25.40	−0.90	1.7	23.7	59	0.94	0.92	0.85
European sample	303	74.85	26.45	−0.1.1	1.3	20.5	297	0.90	0.86	0.74
Effects on parents	60	64.80	22.68	−0.68	3.3	1.7	59	0.90	0.85	0.71
US sample	60	64.80	22.68	−0.68	3.3	1.7	59	0.90	0.85	0.71
European sample	313	65.68	24.48	−0.44	1.6	5.1	261	0.90	0.82	0.88
QoL Total Score	59	68.31	22.14	−0.50	1.7	1.7	54	0.97	0.94	0.85
US sample	59	68.31	22.14	−0.50	1.7	1.7	54	0.97	0.94	0.85
European sample	313	69.97	22.03	−0.65	0.3	2.9	296	0.95	0.91	0.86

*The QoL total Score is the sum of the physical, social and emotional scale.