Table 3.
Other modules.
| Module | Domain/brief description |
|---|---|
| Barriers to care | • Headache information: knowledge about headache and medical care |
| • Consulting behaviors: motivation for consulting or not consulting a doctor/prescribing HCP (current, lapsed, or never consulted); reasons for changes in consulting patterns | |
| • Interactions with doctor:a among consulters only, tests to diagnose, symptoms discussed, and satisfaction | |
| • Awareness: awareness and use of headache diary, knowledge of headache triggers and types of treatments | |
| • Non-prescribing HCP:a consultation patterns among non-prescribing HCPs | |
| • Segmentation, knowledge, and attitudes: attitudes about HCPs, headache, and headache treatments; ability to function with headache | |
| • Experience and expectations: experiences and expectations for treatment efficacy (acute/preventive); important factors in choosing a treatment; interest in treatment options | |
| Comorbidities/Endophenotypes | • Migraine features: usual onset, duration, and treatment; presence of allodynia (12-item Allodynia Symptom Checklist (ASC-12)); five-point frequency allodynia screener); migraine triggers; prodrome features |
| • Allergies and respiratory disorders: presences of different types of allergies, asthma (European Community Respiratory Health Survey-II: Asthma), immunologic disorders, and nonallergic rhinitis | |
| • Chronic pain: total pain index and pain questions from SF-36 (2002 version, two items); presence of temporomandibular disorder, fibromyalgia (Fibromyalgia Rapid Screening Tool), chronic fatigue syndrome, pain disorders (excluding irritable bowel syndrome and headache, including osteoarthritis and joint hypermobility) | |
| • Sleep: presence of insomnia (sleep scale from MOS), sleep apnea (Berlin Sleep Apnea Questionnaire), restless leg syndrome, or other sleep problems | |
| • Autonomic disorders: presence of postural orthostatic tachycardia syndrome, orthostatic hypotension, syncope, vertigo, autonomic disorders, cardiac disorders, and stroke | |
| • Psychiatric disorders: presence of post-traumatic stress disorder (PCL-C and PC-PTSD screeners), generalized anxiety disorder, and other psychiatric disorders | |
| • Internal disorders: presence of gastroesophageal reflux disease (GERD-Q), irritable bowel syndrome (IBS Module 1), and overactive bladder | |
| Family burdenb | • Family structure: relationship status, children within family |
| • Overall burden: burden assessments, absenteeism/presenteeism for routine daily activities | |
| • Family activities: absenteeism/presenteeism for family activities, number of missed important family events, life events, and vacations | |
| • Interactions with partner and children: impact of headache on communication, planning, and supporting partner and/or children | |
| • Financial impact: impact of headache on career, future life planning, and finances | |
| • Life without headache: expectations of life without headache |
GERD-Q: Gastroesophageal Reflux Disease Questionnaire; HCP: health care professional; IBS-1: Irritable Bowel Syndrome Module 1, validated, uses Rome III criteria; MOS: Medical Outcomes Study; PC-PTSD: Primary Care Post-Traumatic Stress Disorder; PCL-C: Post-Traumatic Stress Disorder Checklist-Civilian Version.
Doctor was defined for the respondent as an HCP who is licensed to prescribe medications and included a medical doctor (MD/DO), nurse practitioner, physician assistant, or a dentist (DDS). A complimentary or alternative HCP (non-prescribing) was defined as a chiropractor, psychologist, massage therapist, acupuncturist, physical therapist, naturopath, natural health consultant, or any other type of alternative HCP.
Domains based on Proband Module, but Partner and Child modules had a similar structure.