Table 1.
Means and Standard Deviations of Baseline Questionnaires
| Questionnaires and Subscales | Mean (SD) | Range | Alpha |
|---|---|---|---|
| PedsQL | |||
| Physical | 87.71 (13.72) | 34–100 | 0.85 |
| Emotion* | 80.17 (14.93) | 50–100 | 0.75 |
| Social | 91.38 (10.55) | 60–100 | 0.63 |
| School | 80.38 (18.92) | 41–100 | 0.87 |
| Total | 86.22 (11.27) | 54–100 | 0.93 |
| Cystic Fibrosis Questionnaire –Revised (parent-proxy) | |||
| Physical | 87.87 (15.43) | 25–100 | 0.86 |
| Emotional* | 90.11 (10.83) | 47–100 | 0.68 |
| Vitality | 72.51 (12.72) | 33–100 | 0.64 |
| Eating** | 62.10 (28.63) | 0–100 | 0.73 |
| Treatment Burden | 62.56 (21.56) | 22–100 | 0.68 |
| Health* | 83.41 (16.88) | 44–100 | 0.59 |
| Respiratory* | 84.41 (14.23) | 38–100 | 0.75 |
| Digestion** | 71.46 (16.01) | 33–100 | 0.44 |
| Weight | 49.77 (38.14) | 0–100 | |
| Parenting Stress Index | |||
| Competence | 27.14 (6.34) | 15–42 | 0.77 |
| Isolation | 13.17 (4.75) | 6–27 | 0.83 |
| Attachment | 10.78 (3.11) | 7–19 | 0.59 |
| Health | 12.35 (3.35) | 6–22 | 0.68 |
| Role Restriction | 18.30 (5.36) | 7–35 | 0.81 |
| Depression | 18.68 (5.83) | 9–39 | 0.83 |
| Spouse | 18.08 (5.08) | 7–32 | 0.69 |
| Parent Domain Total | 118.49 (26.43) | 62–194 | 0.94 |
| Family Stress Scale | 31.70 (9.24) | 15–50 | 0.86 |
| Behavioral Pediatrics Feeding Assessment Scale | |||
| Picky Eaters | 24.71 (6.73) | 13–41 | 0.84 |
| Toddler Refusal-General | 28.58 (5.94) | 17–45 | 0.70 |
| Toddler Refusal-Textured Foods | 15.45 (3.72) | 9–28 | 0.62 |
| Older Children Refusal-General | 28.04 (6.62) | 13–49 | 0.77 |
| Stallers | 33.76 (7.47) | 18–55 | 0.78 |
| Total Frequency Score | 76.90 (16.29) | 43–119 | 0.90 |
Note. Z-scores were calculated for the PedsQL and CFQ-R subscales based on means and standard deviations from the current study and Thomas et al. (PedsQL) and Quittner (2012) and Sawicki (2011) for CFQ-R.
*
HRQOL in the current study was significantly higher;
**
HRQOL was significantly lower in the current study.