Table 7 .
SCI-QOL Domain Definitions
| Physical Health |
| Bladder Management Difficulties |
| A range of difficulties associated with bladder management, ranging from ability to carry out their bladder program to worry about bladder accidents, performing their bladder program, and impact on everyday living |
| Bladder Complications |
| A range of difficulties associated with bladder complications, such as urinary tract infection (UTI), UTI impact on everyday living, and bladder issues affecting sexual function |
| Bowel Management Difficulties |
| A range of difficulties associated with bowel management, ranging from ability to carry out their bowel program to worry about bowel accidents, performing their bowel program, and impact on everyday living |
| Pressure Ulcers |
| A range of difficulties associated with Pressure Ulcers, such as the extent to which pressure ulcers hinder engagement in social, cognitive, emotional, physical, and recreational activities |
| Pain Interference† |
| Consequences of pain on relevant aspects of one's life, including the extent to which pain hinders engagement with social, cognitive, emotional, physical, and recreational activities |
| Pain Behavior† |
| Self-reported external manifestations of pain; behavior, verbal or non-verbal and voluntary or deliberate, that typically indicate to others that an individual is experiencing pain, including observable displays, pain severity behaviors, and verbal reports of pain |
| Emotional Health |
| Positive Affect & Well-being* |
| Aspects of one's life that relate to a sense of well-being, life satisfaction or an overall sense of purpose and meaning |
| Depression* |
| Self-reported negative mood (sadness, guilt), views of self (self-criticism, worthlessness), and social cognition (loneliness, interpersonal alienation), as well as decreased positive affect and engagement (loss of interest, meaning, and purpose |
| Anxiety* |
| Symptoms that reflect autonomic arousal and experience of threat, including self-reported fear (fearfulness, panic), anxious misery (worry, dread), hyperarousal (tension, nervousness, restlessness), and somatic symptoms related to arousal (racing heart, dizziness) |
| Stigma‡ |
| Others’ perceptions of oneself and publically enacted negativity, prejudice, and discrimination as a result of injury-related manifestations |
| Resilience |
| Subjective experience of the process and outcome of successfully adapting to difficult or challenging life experiences, especially highly stressful or traumatic events |
| Grief/Loss |
| Emotional reactions of grief (the natural process of reacting to a loss) such as anger, guilt, anxiety, sadness, and despair |
| Self-Evaluation |
| Assessment of one's emotional, evaluative, and cognitive perceptions of competence and worth |
| Psychological Trauma |
| An overwhelming experience of fear, helplessness or horror as a result of exposure to actual or perceived threat(s) to life, bodily integrity or the mind, usually rendering an individual unable to adequately cope |
| Social Participation |
| Ability to Participate in Social Roles and Activities* |
| Degree of involvement in one's usual social roles, activities, and responsibilities, including work, family, friends, and leisure |
| Satisfaction with Social Roles and Activities* |
| Satisfaction with involvement in one's usual social roles, activities, and responsibilities, including work, family, friends, and leisure |
| Independence/Autonomy |
| Perceived independence, ability to tell others about one's needs, and sense of control over one's life |
| Physical Functioning |
| Basic Mobility |
| Ability to carry out activities involving changing and maintaining body positions, transfers, moving and carrying objects, moving around in different locations |
| Self-Care |
| Ability to carry out activities involving eating, dressing, grooming, bathing and toileting, including managing bowel and bladder programs |
| Fine Motor Function |
| Ability to manually hold, manipulate and move objects that require varying degrees of dexterity and/or strength |
| Wheelchair Mobility |
| Ability to transfer in and out of a wheelchair, maneuver a wheelchair under different conditions, engage in activities from a wheelchair and manage wheelchair parts |
| Ambulation |
| Ability to engage in walking activities in different locations that vary based on speed, time and condition and the ability to manage stairs under different conditions |