Table 1.
Tools for measuring HRQOL
| Generic toolsa |
| Quality of Well-Being (QWB) |
| Sickness Impact Profile (SIP) |
| Medical Outcomes Studies (MOS) including SF-12, SF-20, SF-36, etc. |
| Nottingham Health Profile (NHP) |
| Karnofsky Performance Measure (KPS) |
| Psychological General Well-Being Scale |
| Cleary Health-Related Quality of Life Scale |
| Time Trade Off (TTO) |
| Standard Gamble (SG) |
| Spitzer QL index |
| Euroqol EQ-5D (EQ-5D) |
| Health Utilities Index (HUI) |
| Quality-Adjusted Life Years (QALY) |
| World Health Organization Quality of Life Assessment Instrument (WHOQOL, BREF) |
| McGill Quality of Life Scale |
| Dartmouth Primary Care Cooperative Information Project (COOP) |
| Quality-Adjusted Time Without Symptoms or Toxicity (Q-TWIST) |
| Quality of Life Index QL-Index |
| Health Assessment Questionnaire (HAQ) |
| Health Assessment Questionnaire Disability Index (HAQ-DI) |
| RAND Health Insurance Experiment (HIE) |
| Linear Analog Self-Assessment Questionnaire (LASA) |
| Body Pain Index (BPI) |
| Specific toolsb |
| HIV Impact Scale |
| HIV/AIDS-Targeted Quality of Life (HAT-QOL) |
| HIV Symptom Index (HIV-SI or SDM) |
| Symptom Quality of Life Adherence (HIV-SQUAD) |
| HIV Overview of Problems Evaluation System (HOPES) |
| Medical Outcome Study-HIV Health Survey (MOS-HIV) |
| AIDS Health Assessment Questionnaire (AIDS-HAQ) |
| AIDS Clinical Trial Group QOL Health Survey (ACTG-QOL) |
| Functional Assessment of HIV Infection (FAHI) |
| General Health Self Assessment Questionnaire (GHSA) |
| HIV Patient Reported Status and Experience (HIV-PARSE) |
| HIV Cost and Service Utilization Study (HCSUS) |
| Medication Attribution Scale (MAS) |
| HIV-QOL Questionnaire (HIV-QL31) |
| WHOQOL-HIV, WHOWOL-HIV BREF |
| Patient Reported Outcome instrument to measure HRQOL in People with HIV/AIDS (PROQOL-HIV) |
| Living With HIV Scale (LWH) |
a
Used in a number of disease states, not HIV specific
b
Created for use in HIV patients