| Cancer Type | QoL Primary Aim |
QoL Instruments | Number of Time Points |
Respondent Type |
Year Study Closed |
|---|---|---|---|---|---|
| Lymphoma | Yes | CCSS Baseline Questionnaire |
1 | Self OR proxy | 2011 |
| ALL | No | PedsQL | 2 | Self and proxy OR self |
2011 |
| Solid tumor | No | EORTC QLQ-C30; PedsQL |
4 | Self and proxy OR self |
2011 |
| CNS | No | PedsQL; PedsQL Cancer |
3 | Self and proxy OR self |
2011 |
| ALL | No | PedsQL; PedsQL Cancer |
5 | Self and proxy | 2010 |
| CNS | No | PedQL; SF-36 | 3 | Self and proxy OR self |
2009 |
| Solid tumor | No | EORTC QLQ-C30; PCQL |
5 | Self | 2009 |
| ALL | Yes | PedsQL | 1 | Self and proxy | 2008 |
| CNS | No | PCQL-32 | 3 | Self and proxy | 2007 |
| Solid tumor | Yes | PedsQL | 1 | Self and proxy | 2005 |
| AML | Yes | CCSS Baseline Questionnaire; SF-36; CHQ |
1 | Self and proxy OR self |
2005 |
| HSCT | No | PedsQL; PedsQL Cancer; FACT-BMT |
3 | Self and proxy OR self |
2005 |
| CNS | Yes | CHQ; SF-36 | 1 | Self and proxy OR self |
2005 |
| CNS | No | NIH IPI | 5 | Self and proxy | 2003 |
| Other | Yes | MM-QOL; CHQ | 1 | self | 2002 |
| Other | Yes | CHQ; SF-36 | 3 | Self and proxy OR self |
2001 |
Abbreviation: QoL - quality of life; CCSS Baseline Questionnaire - Childhood Cancer Survivor Study Baseline Questionnaire; PedsQL - Pediatric Quality of Life Inventory; EORTC QLQ-C30 - European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire - Core 36; PCQL - Pediatric Cancer Quality of Life Inventory; CHQ - Child Health Questionnaire; FACT-BMT - Functional Assessment of Cancer Therapy, Bone Marrow Transplantation; NIH IPI-; National Institute of Health Impact of Pediatric Illness; MM-QOL - Minneapolis-Manchester Quality of Life
**
Age-dependent where older patients only completed self-report while younger patients had proxy-report and self-report