Table 2.

Questions/themes in the interviews of the adult children of a parent with YOD

• How was it during those years and how is it now for you to have a parent with YOD?

• How has this disease affected your life in the different stages of the disorder?

• How has the disorder affected your family and the relationships within the family, and among your friends in the different stages of the disorder?

• When you look back, is it possible for you to describe something that has been/could have been of help to you or your family during the different stages of the disorder?

• What kind of support have you received, do you receive, or you are in need of today?

• Have you had to make decisions for your parent with YOD, and if so, how has that been?

Abbreviation: YOD, young-onset dementia.