Table 1.

Patient characteristics of females with bleeding disorders (n = 319).

	n	n (%)
Mean age at registration, years (range)	319	26.5 (2–83)
Age group (in years)
2–12	319	61 (19.1)
13–17		61 (19.1)
18–44		145 (45.5)
45–55		23 (7.2)
>55		29 (9.1)
Race/ethnicity
White (non-Hispanic)	319	250 (78.4)
Other		69 (21.6)
Family history
Yes	319	190 (59.6)
No		86 (27.0)
Unknown		43 (13.4)
Age at diagnosis (in years)
2–12	303	156 (51.5)
13–17		56 (18.5)
18–44		78 (25.7)
45–55		7 (2.3)
>55		6 (2.0)
Referral source
Paediatrician	315	75 (23.8)
Family member		58 (18.4)
Haematologist		55 (17.5)
Family practitioner		31 (9.8)
Obstetrician-gynaecologist		20 (6.4)
Other		76 (24.1)
History of anaemia
Yes	319	141 (44.2)
No		15 (4.7)
Unknown		163 (51.1)
Mean age at menarche, years (range)	253	12.1 (7–18)