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. Author manuscript; available in PMC: 2015 Jun 17.
Published in final edited form as: Birth Defects Res A Clin Mol Teratol. 2012 Nov 2;97(1):36–41. doi: 10.1002/bdra.23094

Table 2.

Patient Demographics

Variable No. of patients (%)
Age at enrollment (yrs)
Younger than 2 349 (16.9)
2 to <5 330 (15.9)
5 to <10 431 (20.8)
10 to <13 245 (11.8)
13 to <18 403 (19.5)
18 to <22 200 (9.7)
22 or older 112 (5.4)
Sex
Male 975 (47.1)
Female 1095 (52.9)
Race/ethnicity
Non-Hispanic white 1309 (64.2)
Non-Hispanic black 132 (6.5)
Hispanic or Latino 487 (24.2)
Other 142 (5.2)
SB type
Myelomeningocele 1686 (81.5)
Meningocele 55 (2.7)
Lipomyelomeningocele 279 (13.5)
Fatty Filum 49 (2.4)
Level of lesion
Thoracic (flaccid lower extremities) 295 (14.3)
High-lumbar (hip flexion present) 197 (9.5)
Mid-lumbar (knee extension present) 530 (25.6)
Low-lumbar (foot dorsiflexion present) 370 (17.9)
Sacral (foot plantar flexion present) 678 (32.8)

Note: Site distribution ranged from 61 (2.9%) to 382 (18.5%).

SB, spina bifida.