Table 2.
Timely versus Late Detection of Critical Congenital Heart Disease (CCHD) among Florida Live-Born Infants (n =3603), 1998 to 2007
| CCHD condition | Timely detecteda n (%) | Late detected
|
|
|---|---|---|---|
| n (%) | Median age (range) at detection, daysb | ||
| All (n=3603) | 2778 (77.1) | 825 (22.9) | 88 (2–364) |
| Single CCHD | |||
| AI/A (n=96) | 70 (72.9) | 26 (27.1) | 71 (4–364) |
| COA (n=747) | 472 (63.2) | 275 (36.8) | 41 (2–347) |
| DORV (n=109) | 77 (70.6) | 32 (29.4) | 90 (6–327) |
| d-TGA (n=260)c | 234 (90.0) | 26 (10.0) | 46 (6–122) |
| EA (n=87) | 76 (87.4) | 11 (12.6) | 56 (15–216) |
| HLHS (n=223)c | 196 (87.9) | 27 (12.1) | 18 (3–280) |
| PA (n=96)c | 74 (77.1) | 22 (22.9) | 47 (8–228) |
| SV (n=32) | 24 (75.0) | 8 (25.0) | 140 (40–264) |
| TA (n=101)c | 69 (68.3) | 32 (31.7) | 46 (10–229) |
| TAPVC (n=92)c | 55 (59.8) | 37 (40.2) | 62 (3–289) |
| TOF (n=745)c | 561 (75.3) | 184 (24.7) | 108 (2–358) |
| TRA (n=122)c | 102 (83.6) | 20 (14.0) | 162 (11–235) |
| Multiple CCHD (n=893) | 768 (86.0) | 125 (14.0) | 51 (2–356) |
Timely detection at the birth hospital =Any ICD-9-CM code for CCHD noted on inpatient birth hospital discharge record.
Age in days assessed as the day of first hospital admission on which a congenital heart disease ICD-9-CM code appeared in the discharge record.
Conditions identified as primary targets for pulse oximetry screening (Mahle et al., 2009; Kemper et al., 2011).
AI/A, aortic interruption/atresia / hypoplasia; COA, coarctation / hypoplasia of aortic arch; DORV, double-outlet right ventricle; d-TGA dextro-transposition of the great arteries; EA Ebstein anomaly; HLHS hypoplastic left heart syndrome; PA pulmonary atresia; SV single ventricle; TA truncus arteriosus; TAPVC total anomalous pulmonary venous connection; TOF tetralogy of Fallot;TRA tricuspid atresia.