Table 3.
Condition Complexity Subcategories and Frequencies in the Sample (N = 148)
| n | % | |
|---|---|---|
| Complex chronic condition (CCC) subcategories | ||
| Neuromuscular/neurologic impairment | 124 | 84 |
| Cardiovascular | 45 | 30 |
| Respiratory | 90 | 61 |
| Renal | 26 | 18 |
| Gastrointestinal | 29 | 20 |
| Hematologic and immunodeficiency | 16 | 11 |
| Metabolic | 9 | 6 |
| Other congenital or genetic defect | 61 | 41 |
| Malignancy | 5 | 3 |
| Type of neurologic impairment (NI) | ||
| Brain and spinal cord malformations | 36 | 24 |
| Mental retardation/cognitive impairment | 69 | 47 |
| Central nervous system degeneration/disease | 40 | 27 |
| Cerebral palsy | 34 | 23 |
| Epilepsy | 45 | 30 |
| Muscular dystrophies and myopathies | 10 | 7 |
| Technology assistance (TA) type | ||
| Gastrostomy | 49 | 33 |
| Tracheostomy | 8 | 5 |
| CSF shunt | 17 | 11 |
| Renal support | 2 | 1 |
| Cardiac support | 5 | 3 |
| Other | 26 | 18 |
Note. Children could have more than one CCC type, NI type, and TA type. Categories and subcategories based on the publication by Cohen, Berry, Camacho, et al. (2012); see text for additional details..