Table 4.
Outcome Measures and Items
| Measure | Item |
|---|---|
| Global rating of health carea | How would you rate your child’s overall health care? |
| Global personal doctor ratinga | How would you rate your child’s personal doctor? |
| Family centered careb | How often were your child’s providers sensitive to your family’s values and customs? |
| How often did your child’s providers help you feel like a partner in his/her care? | |
| How often did you get the specific information you needed from your providers? | |
| How often did your child’s providers listen carefully to you? | |
| How often did your child’s providers spend enough time with your child? | |
| Getting needed careb | How often was it easy to get appointments for your child with specialists? |
| How often was it easy to get the care, tests, or treatment you thought your child needed? | |
| Getting care quicklyb | When your child needed care right away, how often did your child get care as soon as you thought he or she needed? |
| How often did you get an appointment for health care at the clinic as soon as you thought your child needed? | |
| Provider communicationb | How often did your child’s providers explain things in a way that was easy to understand? |
| How often did your child’s providers listen carefully to you? | |
| How often did your child’s providers show respect for what you had to say? | |
| How often did your child’s providers explain things in a way that was easy for your child to understand? | |
| How often did your child’s providers spend enough time with your child? | |
| Care coordination adequacyb | How often did you get as much help as you wanted with arranging or coordinating your child’s care? |
| Help neededc | How much help from others has your family needed in the past 12 months? |
| Help receivedc | How much help has your family received in the past 12 months? |
Note. All items except help needed and help received are from the Consumer Assessment of Healthcare Providers and Systems (CAHPS) children with chronic conditions item set.
Response options:
a
11-point Likert item: 0 (“worst possible”) to 10 (“best possible”);
b
4-point Likert item: 1 (never), 2 (sometimes), 3 (usually), 4 (always);
c
visual analog scale with end anchors: “none” and “a lot”.