Table 2.
Parent Emotional Distress, Caregiver Strain and Child Functioning
| Mean (SD) | Range | |
|---|---|---|
| Parent Emotional Distress | ||
| Anxietya | 45.6 (9.8) | 38 – 81 |
| Depressiona | 44.8 (7.4) | 40 – 81 |
| Intrusionb | 5.8 (6.3) | 0.0 – 29.0 |
| Avoidanceb | 4.1 (5.5) | 0.0 – 24.0 |
| Hyperarousalb | 2.5 (4.2) | 0.0 – 20.0 |
| Posttraumatic Stressb | 12.3 (15.0) | 0.0 – 70.0 |
| Parent Strainc | ||
| Objective | 1.32 (.61) | 1.0 – 3.9 |
| Internalized Subjective | 1.99 (.99) | 1.0 – 4.8 |
| Externalized Subjective | 1.67 (.54) | 1.0 – 3.3 |
| Total Strain | 1.66 (.58) | 1.0 – 4.0 |
| Child Functioningd | ||
| Physical | 86.86 (14.88) | 37.5 – 100 |
| Emotional | 79.49 (20.02) | 25 – 100 |
| Social | 85.24 (18.58) | 0.0 – 100 |
| School | 75.08 (21.29) | 15 – 100 |
| Child Functioning Cancerd | ||
| Pain | 84.65 (19.99) | 0.0 – 100 |
| Worry | 89.24 (20.87) | 0.0 – 100 |
| Physical Appearance | 78.87 (24.84) | 0.0 – 100 |
| Cognitive Problems | 68.69 (23.67) | 0.0 – 100 |
| Child Functioning Compositesd,e | ||
| Physical | 86.42 (14.58) | 0.0 – 100 |
| Emotional | 83.14 (18.40) | 0.0 – 100 |
| Social | 82.83 (17.20) | 0.0 – 100 |
| Cognitive | 71.88 (21.42) | 0.0 – 100 |
a
BSI-18: T-scores M=50, SD=10
b
IES-R: item raw scores 0–4, higher scores=higher levels of stress.
c
CGSQ: item raw scores 0–4, higher scores=higher caregiver strain.
d
PedsQL and PedsQL-Cancer: Item raw scores 0–4 are reverse scored and linearly transformed from 0–100, higher scores=better health-related quality of life (HRQOL).
e
Child Functioning Composites: PedsQL and PedsQL-Cancer subscales were combined to create 4 child functioning composites. Item raw scores 0–4 are reverse scored and linearly transformed from 0–100, higher scores=better HRQOL.