Table 2.
Themes and associated concepts | N* | Respondents mentioning theme (%) | Formulated concept mentioned within all those for that theme (%) |
---|---|---|---|
|
59 | 55 | |
Holistic care—spiritual, emotional and physical | 23 | 26 | |
Patient is supported | 21 | 24 | |
Patient is treated with respect | 16 | 18 | |
Patient is treated with dignity | 14 | 16 | |
Patient is in the presence of loved ones | 7 | 8 | |
Care aligns with the patient’s cultural and religious beliefs | 4 | 5 | |
Patient is safe | 3 | 3 | |
|
56 | 52 | |
Accessible and provides timely care | 17 | 19 | |
Provides compassionate care | 15 | 16 | |
Collaborative | 14 | 15 | |
Knowledgeable and skilled | 13 | 14 | |
Provides high-quality care | 12 | 13 | |
Educates and provides information and resources | 8 | 9 | |
Provides continuity of care | 5 | 5 | |
Takes action and ownership for the patient | 5 | 5 | |
Involved early in the patient’s journey | 2 | 2 | |
|
55 | 51 | |
Patient's wishes are fulfilled | 49 | 64 | |
Death in a place of choice | 19 | 25 | |
Availability of residence hospice | 8 | 11 | |
|
50 | 47 | |
Pain and symptom management | 37 | 63 | |
Patient is comfortable | 22 | 37 | |
|
41 | 38 | |
Healthcare team assists in emotionally preparing patient for a peaceful death | 21 | 44 | |
Creating an end-of-life care plan | 9 | 19 | |
Communicating expectations so that patients and families are prepared | 7 | 15 | |
Focus on living/quality of remaining days | 5 | 10 | |
Patients have hope that their remaining days will be good | 5 | 10 | |
Planning for the legal aspects of death | 1 | 2 | |
|
39 | 36 | |
Healthcare team communicates openly and in a timely manner | 14 | 26 | |
Healthcare team listens to patient needs, feelings and experiences | 11 | 21 | |
Relationship/bond formed between healthcare providers and patient | 11 | 21 | |
Patient and families trust the healthcare team | 6 | 11 | |
Patient knows help is available and who to contact | 6 | 11 | |
Healthcare team creates options and choices for the patient and family | 3 | 6 | |
Healthcare team is honest to patients and families | 2 | 4 | |
|
38 | 36 | |
Family needs are supported | 25 | 63 | |
Family inclusive care | 15 | 38 | |
|
15 | 14 | |
How the journey was experienced for the patient and family | 11 | 73 | |
Patient experienced good outcomes/death | 4 | 27 | |
|
7 | 7 | |
Creating the normalcy of palliative care | 4 | 57 | |
Palliative care valued by the healthcare system | 3 | 43 |
*N=number of unique participants citing the theme. Participants may have indicated multiple concepts within a theme.