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. 2015 Jun 29;5(6):e007492. doi: 10.1136/bmjopen-2014-007492

Table 2.

End-of-life themes from palliative care providers

Themes and associated concepts N* Respondents mentioning theme (%) Formulated concept mentioned within all those for that theme (%)
  • Addressing the non-physical needs

59 55
  Holistic care—spiritual, emotional and physical 23 26
  Patient is supported 21 24
  Patient is treated with respect 16 18
  Patient is treated with dignity 14 16
  Patient is in the presence of loved ones 7 8
  Care aligns with the patient’s cultural and religious beliefs 4 5
  Patient is safe 3 3
  • Healthcare teams’ nature of palliative care delivery

56 52
  Accessible and provides timely care 17 19
  Provides compassionate care 15 16
  Collaborative 14 15
  Knowledgeable and skilled 13 14
  Provides high-quality care 12 13
  Educates and provides information and resources 8 9
  Provides continuity of care 5 5
  Takes action and ownership for the patient 5 5
  Involved early in the patient’s journey 2 2
  • Patient's wishes are honoured

55 51
  Patient's wishes are fulfilled 49 64
  Death in a place of choice 19 25
  Availability of residence hospice 8 11
  • Addressing the physical needs

50 47
  Pain and symptom management 37 63
  Patient is comfortable 22 37
  • Preparing for and accepting death

41 38
  Healthcare team assists in emotionally preparing patient for a peaceful death 21 44
  Creating an end-of-life care plan 9 19
  Communicating expectations so that patients and families are prepared 7 15
  Focus on living/quality of remaining days 5 10
  Patients have hope that their remaining days will be good 5 10
  Planning for the legal aspects of death 1 2
  • Communication and relationship development

39 36
  Healthcare team communicates openly and in a timely manner 14 26
  Healthcare team listens to patient needs, feelings and experiences 11 21
  Relationship/bond formed between healthcare providers and patient 11 21
  Patient and families trust the healthcare team 6 11
  Patient knows help is available and who to contact 6 11
  Healthcare team creates options and choices for the patient and family 3 6
  Healthcare team is honest to patients and families 2 4
  • Involving and supporting the family

38 36
  Family needs are supported 25 63
  Family inclusive care 15 38
  • Understanding the patient and family experience

15 14
  How the journey was experienced for the patient and family 11 73
  Patient experienced good outcomes/death 4 27
  • Society and the health system have a culture of supporting palliative care

7 7
  Creating the normalcy of palliative care 4 57
  Palliative care valued by the healthcare system 3 43

*N=number of unique participants citing the theme. Participants may have indicated multiple concepts within a theme.