Table A1.

Disability-related organizations for potential preparedness education efforts

Organization/agency name	Description	Preparedness education and planning opportunities	Contact information
Local organizations
Public school system	City, town, or county public school system special education or pupil services department and/or special education parent council or other similar group	Special education parent councils often host training sessions, which would provide an opportunity for parent education. School systems may be able to share aggregate information (without student names) that might be useful for local planning purposes	Contact the local school system
Americans with Disabilities Act (ADA) co- ordinator or Disability Commission	City, town, or county ADA compliance officials or a local Disability Commission	These groups may be able to foster connections to local disability service providers or advocacy groups or be willing to host a preparedness training	Contact city, town, or county offices
State organizations
Family Voices	National network of state organizations promoting family- centered care for children with disabilities/SHCN	State Family Voices groups may be interested in preparedness presentations at conferences, may be able to serve as a conduit to local or state disability provider or advocacy organizations, or be willing to share preparedness information with member parents, for example via e-mail or the Internet	Go to http://www.familyvoices.org/ to find a state’s Family Voices group
Parent to Parent (P2P)	Many states have parent led “parent to parent” mutual support groups	State P2P groups may be interested in preparedness presentations at conferences, may be willing to serve as a conduit to local or state disability provider or advocacy organizations, or be willing to share information with member parents, for example via e-mail or the Internet	Go to http://www.p2pusa.org/p2pusa/SitePages/p2p–support.aspx to find a state’s Parent to Parent group(s)
Parent Training and Information Centers (PTIs)	Each state has one or more PTIs for parents of children with disabilities	PTIs may have regional or statewide trainings at which emergency managers might speak or share information and resources. Information might also be shared via the PTI Web site	Go to http://www.parentcenternetwork.org/parentcenterlisting.html to find a state’s PTI
University Centers of Excellence in Developmental (and related) Disabilities (UCEDD) and Leader- ship Education in Neurodevelopmental (and related) Disabilities (LEND) programs	Many states have university- affiliated UCEDD research centers and/or LEND inter- disciplinary training pro- grams with strong expertise related to the health and well-being of children and adults with developmental and other disabilities	UCEDDs and LENDs may be able to foster connections to disability provider or advocacy organizations; have an interest in conducting relevant research; or host public preparedness education programs. LEND trainees (students) might be interested in developing emergency preparedness education or dissemination projects	Go to the following links to find a state’s LEND or UCEDD program(s): LEND: http://www.aucd.org/directory/directory.cfm?program=LEND UCEDD: http://www.aucd.org/directory/directory.cfm?program=UCEDD