Table 1.
Survey tool by QOL domains
| Domain | Question |
|---|---|
| Family/social network | Do you have trouble meeting the needs of your family because of your physical condition since your diagnosis of breast cancer? |
| How much emotional support do you get from your family since your diagnosis of breast cancer? | |
| How much emotional support do you get from your friends and neighbors since your diagnosis of breast cancer? | |
| How well did your family accept your breast cancer diagnosis? | |
| How much isolation do you feel is caused by your cancer? | |
| Appearance | Has your cancer or treatment caused changes in your appearance? |
| Do you see yourself less attractive since your diagnosis of breast cancer? Has your cancer or treatment caused changes in your appearance? | |
| Has your cancer or treatment caused changes in your self concept (the way you see yourself)? Do you see yourself less attractive since your diagnosis of breast cancer? | |
| Relationships | *Has your cancer or treatment caused changes in your self concept (the way you see yourself)? |
| *How stable was your relationship before your diagnosis? | |
| *How stable is your relationship now since your diagnosis? How stable was your relationship before your diagnosis? | |
| *How well did your partner accept your breast cancer diagnosis? How stable is your relationship now since your diagnosis? | |
| *Is your continuing health care interfering with your personal relationship? How well did your partner accept your breast cancer diagnosis? | |
| *Did your disease have any negative impact on your relationship? Is your continuing health care interfering with your personal relationship? | |
| *How much support do you get from your partner since your diagnosis of breast cancer? Did your disease have any negative impact on your relationship? | |
| *Is the amount of support you receive from your partner since your diagnosis of breast cancer sufficient to meet your needs? How much support do you get from your partner since your diagnosis of breast cancer? | |
| *Do you feel close to your partner since your diagnosis of breast cancer? Is the amount of support you receive from your partner since your diagnosis of breast cancer sufficient to meet your needs? | |
| *Since your diagnosis did you ever have the impression that your partner sees you less attractive? Do you feel close to your partner since your diagnosis of breast cancer? | |
| *Since your diagnosis has your partner ever mentioned that you are less attractive? Since your diagnosis did you ever have the impression that your partner sees you less attractive? | |
| Sexuality | Since your diagnosis has your partner ever mentioned that you are less attractive? |
| Have you been sexually active during the past year? | |
| If you answered yes to question #10 above, how satisfied are you with your sex life at this time? Have you been sexually active during the past year? | |
| Is your sexuality impacted by your cancer? If you answered yes to question #10 above, how satisfied are you with your sex life at this time? | |
| Do you worry about your sexual attractiveness since your diagnosis of breast cancer? Is your sexuality impacted by your cancer? | |
| Do you worry about your sexual attractiveness since your diagnosis of breast cancer? | |
| Work/finances | *Since your diagnosis have you been able to work either at home or outside of the home? |
| Is your work (including work in home) fulfilling since your diagnosis of breast cancer? Since your diagnosis have you been able to work either at home or outside of the home? | |
| To what degree has your breast cancer diagnosis and treatment interfered with your activities at home? Is your work (including work in home) fulfilling since your diagnosis of breast cancer? | |
| To what degree has your breast cancer diagnosis and treatment interfered with your employment? To what degree has your breast cancer diagnosis and treatment interfered with your activities at home? | |
| *How much financial burden have you incurred as a result of your breast cancer and treatment? To what degree has your breast cancer diagnosis and treatment interfered with your employment? | |
| *How much financial burden have you incurred as a result of your breast cancer and treatment? | |
| Physical symptoms | Are you fatigued since your diagnosis of breast cancer? |
| Has your appetite changed since your diagnosis? Are you fatigued since your diagnosis of breast cancer? | |
| Do you have aches or pain since your diagnosis of breast cancer? Has your appetite changed since your diagnosis? | |
| Are you experiencing sleep changes since your diagnosis of breast cancer? Do you have aches or pain since your diagnosis of breast cancer? | |
| Have you experienced weight gain since your diagnosis of breast cancer? Are you experiencing sleep changes since your diagnosis of breast cancer? | |
| Do you have vaginal dryness since your diagnosis of breast cancer? Have you experienced weight gain since your diagnosis of breast cancer? | |
| Do you have menopausal symptoms (e.g. hot flashes) since your diagnosis of breast cancer? Do you have vaginal dryness since your diagnosis of breast cancer? | |
| Have you experienced menstrual changes since your diagnosis of breast cancer? | |
| Do you have menopausal symptoms (e.g. hot flashes) since your diagnosis of breast cancer? | |
| Are you satisfied with your overall physical health since your diagnosis of breast cancer? Have you experienced menstrual changes since your diagnosis of breast cancer? | |
| Distress | Are you satisfied with your overall physical health since your diagnosis of breast cancer? |
| Did you feel distressed about the initial diagnosis? | |
| Did you feel distressed about the cancer chemotherapy? | |
| Did you feel distressed about the cancer radiation? | |
| Did you feel distressed about cancer surgery? | |
| Do you have anxiety since your diagnosis of breast cancer? | |
| Do you feel depressed since your diagnosis of breast cancer? | |
| How much uncertainty do you feel about your future since your diagnosis of breast cancer? | |
| Life with breast cancer | Have you accepted your breast cancer diagnosis? |
| How difficult is it for you to cope most of the days as a result of your breast cancer? | |
| How difficult is it for you to cope most of the days as a result of your treatment? | |
| Do you think your quality of life is good since your diagnosis of breast cancer? | |
| Do you feel happy since your diagnosis of breast cancer? | |
| Do you feel like you are in control of situations in your life since your diagnosis of breast cancer? | |
| How satisfying is your life since your diagnosis of breast cancer? | |
| How useful do you feel since your diagnosis of breast cancer? |
*
Previously unvalidated item.