Table 2.
Reported overall and met needs by Needs Surveys items (N = 143).
Section | Item | Neededa | Need metb |
---|---|---|---|
Information | How children grow and develop | 40 | 60 |
How to play or talk with my child | 50 | 82 | |
How to teach my child | 64 | 64 | |
How to handle my child’s behavior | 77 | 62 | |
About ASD | 65 | 82 | |
About services presently available for my child | 82 | 52 | |
About services my child might receive in the future | 79 | 22 | |
Family and social support | Talking with someone in my family about concerns | 60 | 71 |
Having friends to talk to | 71 | 70 | |
Finding more time to myself | 74 | 42 | |
Helping my spouse accept that our child has ASD | 43 | 52 | |
Helping our family discuss problems and reach solutions | 53 | 43 | |
Helping our family support each other during difficult times | 58 | 37 | |
Deciding who will do household chores, child care, and other family tasks | 43 | 50 | |
Deciding on and doing family recreational activities | 47 | 52 | |
Financial | Paying for expenses such as food, housing, clothing, or transportation | 38 | 57 |
Getting special equipment | 35 | 57 | |
Paying for therapy or day care | 54 | 50 | |
Counseling or help getting a job | 28 | 52 | |
Paying for respite care | 60 | 76 | |
Paying for toys my child needs | 30 | 58 | |
Explaining to others | Explaining my child’s condition to my parents/spouse’s parents | 31 | 64 |
Explaining my child’s condition to siblings | 35 | 46 | |
Knowing how to respond when friends, neighbors, strangers ask questions about my child | 44 | 34 | |
Explaining my child’s condition to other children or peers | 48 | 31 | |
Finding reading materials about other families who have a child like mine | 51 | 42 | |
Child care | Locating respite-care workers able to care for my child | 57 | 32 |
Locating a day-care program or preschool for my child | 31 | 68 | |
Getting appropriate care for my child in a church/religious event | 28 | 33 | |
Professional support | Meeting with a minister, priest, rabbi, or other religious leader | 17 | 67 |
Meeting with a counselor | 54 | 64 | |
More time to talk with my child’s teachers or therapists | 53 | 55 | |
Community services | 66 | 52 | |
Meeting and talking with other parents who have a child with ASD | 66 | 58 | |
Locating a doctor who understands me and my child’s needs | 66 | 59 | |
Locating a dentist who will see my child | 58 | 63 |
ASD: autism spectrum disorder.
Percentage of total respondents who indicated area of need (“needed, already provided” + “needed, not provided”).
Proportion (%) of previous column who responded “needed, already provided.”