Table 1.
Participant demographics
| Characteristics | Patients (total sample size 20) | Carers (total sample size 14*) |
|---|---|---|
| Sex | ||
| Female | 15 | 6 |
| Male | 5 | 8 |
| Age (years) | ||
| 31–40 | 4 | 1 |
| 41–50 | 7 | 2 |
| 51–60 | 5 | 5 |
| 61–70 | 4 | 4 |
| 71–80 | 0 | 2 |
| Level of education | ||
| No formal qualifications | 0 | 6 |
| Some qualifications up to O-level or equivalent | 6 | 2 |
| A-levels or equivalent | 2 | 2 |
| University level or above | 12 | 4 |
| Employment status | ||
| Employed FT | 2 | 2 |
| Employed PT | 2 | 1 |
| Employed (on long-term sick) | 1 | 0 |
| Unemployed—looking for work | 1 | 1 |
| Out of the labour force not seeking work | 9 | 2 |
| Retired early | 2 | 2 |
| Retired due to age | 3 | 5 |
| Full-time carer | 0 | 1 |
*One carer only attended a focus group.
FT, full time; PT, part time.