Table I. Demographic information for Round 1 respondents.
| Self-identified role | Responses (n)* | |
|---|---|---|
| Nurse, nurse case manager, or nurse practitioner | 96 (27%) | |
| Certified in hospice/palliative medicine | 23(24%) | |
| Physician | 82 (23%) | |
| Specialization | ||
| Board-certified in hospice/palliative medicine | 35 (43%) | |
| Other | 22 (29%) | |
| Pediatrics | 16 (20%) | |
| Critical care | 15 (18%) | |
| Hematology/oncology | 14 (17%) | |
| Neonatology | 8 (15%) | |
| Parent | 72 | |
| Diagnosis of child | ||
| Neurologic diagnosis | 24 (34%) | |
| Oncologic diagnosis | 14 (20%) | |
| Multi-organ diagnosis | 5 (7%) | |
| Neonatal condition | 4 (<1) | |
| Other diagnosis | 24 (34%) | |
| Parent self-identified as bereaved | 53 (73%) | |
| Parent self-identified as healthcare professional | 39 (54%) | |
| Social worker | 51 | |
| Chaplain | 18 | |
| Administrator | 13 | |
| Child life specialist | 10 | |
| Psychologist | 7 | |
| Pharmacist | 3 | |
*
Participants may have selected multiple responses. For example, 52 parents of children who had received palliative-care services also self-identified as health professionals. Pediatric providers may have self-identified pediatrics as their primary field in addition to a subspecialty such as oncology or may have self-identified as administrators if this role was relevant to their work.