Table II. Experiential involvement in pediatric palliative care of Round 1 respondents.
Experience measure | Participant responses | |||
---|---|---|---|---|
Years of experience in role(n= 291 responses*) | None | <5 y | 5–10 y | >10 y |
n = 2 (0%) | n = 62 (21%) | n = 75 (26%) | n = 152 (52%) | |
No. of children at EOL in past 12 mos. (n = 242 responses) | None | <10 | 10–20 | >20 |
n = 33 (11%) | n = 53 (37%) | n = 62 (21%) | n = 94 (33%) | |
Participation in research (n = 242 responses) | Not involved in research | PI or co-PI on a PC project | First author of a PC manuscript | Senior author of a PC manuscript |
n = 102 (42%) | n = 93 (38%) | n = 27 (11%) | n = 21 (<1%) | |
Involvement in PC education (n = 242 responses)† | Lectures on PC topics as part of professional role | Active in PC teaching as member of academic institution | Lectures in organized pediatric PC curriculum | Holds education degree (PhD or master's) and is involved in PC education |
n = 110 (45%) | n = 93 (38%) | n = 79 (33%) | n = 30 (12%) |
Forty-nine respondents who were both healthcare providers and parents of children who had received palliative services reported duration in each role.
Respondents could select more than 1 answer.
Abbreviations: EOL: end of life; PC: palliative care; PI: principal investigator.