TABLE 1.
Cohort Clinical and Demographic Characteristics
Characteristics | NI | Multiple CCC | Single CCC | ||||
---|---|---|---|---|---|---|---|
Overall | TA | No TA | TA | No TA | TA | No TA | |
n = 15 771 | n = 873 | n = 3495 | n = 152 | n = 911 | n = 838 | n = 9502 | |
Age group, n (%) | |||||||
Newborna | 5262 (33.4) | 46 (5.3) | 716 (20.5) | 41 (27.0) | 558 (61.3) | 148 (17.7) | 3753 (39.5) |
Infancy (nonnewborn) | 2226 (14.1) | 52 (6.0) | 367 (10.5) | 30 (19.7) | 125 (13.7) | 68 (8.1) | 1584 (16.7) |
1–4 y | 2959 (18.8) | 198 (22.7) | 899 (25.7) | 44 (28.9) | 98 (10.8) | 232 (27.7) | 1488 (15.7) |
5–9 y | 2430 (15.4) | 263 (30.1) | 705 (20.2) | 25 (16.4) | 57 (6.3) | 207 (24.7) | 1173 (12.3) |
10–13 yb | 2212 (14.0) | 251 (28.8) | 643 (18.4) | 61 (6.7) | 148 (17.7) | 1098 (11.6) | |
14–16 yb | 682 (4.3) | 63 (7.2) | 165 (4.7) | 12 (1.3) | 35 (4.2) | 406 (4.3) | |
Gender, female | 7030 (44.6) | 384 (44.0) | 1520 (43.5) | 74 (48.7) | 421 (46.2) | 346 (41.3) | 4285 (45.1) |
Technology device, n (%) | |||||||
Gastrostomy | 737 (4.7) | 417 (47.8) | 72 (47.4) | 248 (29.6) | |||
Tracheostomyc | 162 (1.0) | 58 (6.6) | 87 (10.4) | ||||
CSF shuntc | 359 (2.2) | 322 (36.9) | 36 (4.3) | ||||
Evacuation tubes | 227 (1.4) | 53 (6.1) | 43 (28.3) | 131 (15.6) | |||
Renal support | 264 (1.7) | 32 (3.7) | 23 (15.1) | 209 (24.9) | |||
Cardiac support | 188 (1.1) | 17 (1.9) | 15 (9.9) | 156 (18.6) | |||
Other devicec,d | 30 (0.2) | 17 (1.9) | 10 (1.2) |
CSF, cerebrospinal fluid.
This includes 767 VLBW (<1000 g) newborns (4.9% of entire cohort).
Eighteen children (11.4%) aged 10 to 16 y combined. Individual cell data not displayed because of small sample size to maintain confidentiality.
Twenty-one (13.8%) with multiple CCCs with TA had a tracheostomy, CSF shunt, or other device. Individual cell data not displayed because of small sample size to maintain confidentiality.
Other includes devices such as indwelling pumps (eg, baclofen pump).