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. 2012 Dec;130(6):e1463–e1470. doi: 10.1542/peds.2012-0175

TABLE 1.

Cohort Clinical and Demographic Characteristics

Characteristics NI Multiple CCC Single CCC
Overall TA No TA TA No TA TA No TA
n = 15 771 n = 873 n = 3495 n = 152 n = 911 n = 838 n = 9502
Age group, n (%)
 Newborna 5262 (33.4) 46 (5.3) 716 (20.5) 41 (27.0) 558 (61.3) 148 (17.7) 3753 (39.5)
 Infancy (nonnewborn) 2226 (14.1) 52 (6.0) 367 (10.5) 30 (19.7) 125 (13.7) 68 (8.1) 1584 (16.7)
 1–4 y 2959 (18.8) 198 (22.7) 899 (25.7) 44 (28.9) 98 (10.8) 232 (27.7) 1488 (15.7)
 5–9 y 2430 (15.4) 263 (30.1) 705 (20.2) 25 (16.4) 57 (6.3) 207 (24.7) 1173 (12.3)
 10–13 yb 2212 (14.0) 251 (28.8) 643 (18.4) 61 (6.7) 148 (17.7) 1098 (11.6)
 14–16 yb 682 (4.3) 63 (7.2) 165 (4.7) 12 (1.3) 35 (4.2) 406 (4.3)
Gender, female 7030 (44.6) 384 (44.0) 1520 (43.5) 74 (48.7) 421 (46.2) 346 (41.3) 4285 (45.1)
Technology device, n (%)
 Gastrostomy 737 (4.7) 417 (47.8) 72 (47.4) 248 (29.6)
 Tracheostomyc 162 (1.0) 58 (6.6) 87 (10.4)
 CSF shuntc 359 (2.2) 322 (36.9) 36 (4.3)
 Evacuation tubes 227 (1.4) 53 (6.1) 43 (28.3) 131 (15.6)
 Renal support 264 (1.7) 32 (3.7) 23 (15.1) 209 (24.9)
 Cardiac support 188 (1.1) 17 (1.9) 15 (9.9) 156 (18.6)
 Other devicec,d 30 (0.2) 17 (1.9) 10 (1.2)

CSF, cerebrospinal fluid.

a

This includes 767 VLBW (<1000 g) newborns (4.9% of entire cohort).

b

Eighteen children (11.4%) aged 10 to 16 y combined. Individual cell data not displayed because of small sample size to maintain confidentiality.

c

Twenty-one (13.8%) with multiple CCCs with TA had a tracheostomy, CSF shunt, or other device. Individual cell data not displayed because of small sample size to maintain confidentiality.

d

Other includes devices such as indwelling pumps (eg, baclofen pump).

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