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. Author manuscript; available in PMC: 2016 Apr 1.
Published in final edited form as: Neurodegener Dis Manag. 2015 Jun;5(3):203–215. doi: 10.2217/nmt.15.10

Table 1. Components of family-centered function-focused care for dementia.

Component When By whom Description
Environmental and policy assessment Beginning of the study; at 3 and 9 months during implementation Fam-FFC Research Nurse with unit champions; recommendations for change discussed with administration and initiated as approved Modifications included: a policy to safely label glasses/hearing aids; bedside white boards to promote FCG/patient communication with the interdisciplinary team and access to inexpensive hearing amplifiers, activity cart/supplies and mobility devices

Staff education and training (delivery options included: instructor-led PowerPoint presentations and one on one review) Beginning of the study Fam-FFC Research Nurse on intervention units; co-investigator on control units Content includes: hospital experience for person with dementia and family; cognitive and functional assessment, and evidence-based approaches to prevent delirium and functional decline; FFC (incorporating into routine care, specific techniques/equipment, safety considerations, goal setting/discharge planning) and partnership with families (assessment of preferences, information-sharing, care planning, promoting advocacy and patient/family engagement in decision-making and discharge planning)
At month 2, 3 and 5: educational reminders of educational key points provided in Staff mailboxes and posted on the educational board of the intervention unit

Ongoing training and motivation of nursing staff Following initial education of the staff; during 12 months of implementation Fam-FFC Research Nurse mentors the unit champions and nursing staff Assistance to champions and nurses was provided on consented patients to: assess physical capability; establish and update goals with input from FCGs/patients and develop a care plan with FCG/patient addressing factors that impede FFC (e.g., acute illness, sedation, pain, fear/anxiety, pain, apathy, neuropsychiatric symptoms and depression) and support the unit champions to mentor and motivate nursing Staff (RN, LPN and nursing assistants)

FamPath care pathway During the 12 months of implementation Fam-FFC Research Nurse Family/patient education: provided in lay terms (cueing and motivating techniques, support of physical activity, meals, cognitive stimulation and safety) linked to joint FCG/nurse assessment (baseline cognition, physical function and social profile); jointly developed bedside, individualized goals and treatment plans (updated daily; discharge checklist); coaching of primary nurse to communicate and provide a copy of FamPath plan to postacute providers and postacute follow-up to provide ongoing education and modification of the FFC plan (home visit within 48 h of discharge, weekly telephone calls for a total of 7 additional weeks, then monthly for 4 months), coaching of FCGs to communicate FFC goals and expectations to the postacute providers as indicated

Not included in the control unit education.

FCG: Family caregiver; FFC: function-focused care; LPN: Licensed practical nurse; RN: Registered nurse.