Table 1. Components of family-centered function-focused care for dementia.
Component | When | By whom | Description |
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Environmental and policy assessment | Beginning of the study; at 3 and 9 months during implementation | Fam-FFC Research Nurse with unit champions; recommendations for change discussed with administration and initiated as approved | Modifications included: a policy to safely label glasses/hearing aids; bedside white boards to promote FCG/patient communication with the interdisciplinary team and access to inexpensive hearing amplifiers, activity cart/supplies and mobility devices |
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Staff education and training (delivery options included: instructor-led PowerPoint presentations and one on one review) | Beginning of the study | Fam-FFC Research Nurse on intervention units; co-investigator on control units | Content includes: hospital experience for person with dementia and family; cognitive and functional assessment, and evidence-based approaches to prevent delirium and functional decline; FFC (incorporating into routine care, specific techniques/equipment, safety considerations, goal setting/discharge planning) and partnership with families† (assessment of preferences, information-sharing, care planning, promoting advocacy and patient/family engagement in decision-making and discharge planning) |
At month 2, 3 and 5: educational reminders of educational key points provided in Staff mailboxes and posted on the educational board of the intervention unit | |||
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Ongoing training and motivation of nursing staff | Following initial education of the staff; during 12 months of implementation | Fam-FFC Research Nurse mentors the unit champions and nursing staff | Assistance to champions and nurses was provided on consented patients to: assess physical capability; establish and update goals with input from FCGs/patients and develop a care plan with FCG/patient addressing factors that impede FFC (e.g., acute illness, sedation, pain, fear/anxiety, pain, apathy, neuropsychiatric symptoms and depression) and support the unit champions to mentor and motivate nursing Staff (RN, LPN and nursing assistants) |
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FamPath care pathway | During the 12 months of implementation | Fam-FFC Research Nurse | Family/patient education: provided in lay terms (cueing and motivating techniques, support of physical activity, meals, cognitive stimulation and safety) linked to joint FCG/nurse assessment (baseline cognition, physical function and social profile); jointly developed bedside, individualized goals and treatment plans (updated daily; discharge checklist); coaching of primary nurse to communicate and provide a copy of FamPath plan to postacute providers and postacute follow-up to provide ongoing education and modification of the FFC plan (home visit within 48 h of discharge, weekly telephone calls for a total of 7 additional weeks, then monthly for 4 months), coaching of FCGs to communicate FFC goals and expectations to the postacute providers as indicated |
Not included in the control unit education.
FCG: Family caregiver; FFC: function-focused care; LPN: Licensed practical nurse; RN: Registered nurse.