Table 2.
Birth Defectsa in the NHBCP from 2007–2009 in the Identifiable Information Retained (IIR) Groupb and the De-identified Information Retained (DIIR) Groupc
| Birth Defect | IIR Group (n=656) | DIIR Group (n=120) | ||
|---|---|---|---|---|
| n | % | n | % | |
| Spina bifida | 7 | 100 | 0 | 0 |
| Microcephaly | 12 | 80 | 3 | 20 |
| Macrotia | 5 | 83 | 1 | 17 |
| Tetralogy of Fallot | 10 | 83 | 2 | 17 |
| Ventricular septal defects | 38 | 84 | 7 | 16 |
| Patent foramen ovale | 14 | 93 | 1 | 7 |
| Pulmonary valve stenosis | 10 | 83 | 2 | 17 |
| Hypoplastic left heart syndrome | 9 | 100 | 0 | 0 |
| Pulmonary atresia | 10 | 91 | 1 | 9 |
| Coarctation of the aorta | 4 | 80 | 1 | 20 |
| Orofacial clefts | 34 | 87 | 5 | 13 |
| Pyloric stenosis | 79 | 82 | 17 | 18 |
| Intestinal atresia | 8 | 80 | 2 | 20 |
| Intestinal aganglionosis | 6 | 100 | 0 | 0 |
| Hypospadias | 126 | 82 | 27 | 18 |
| Unilateral renal agenesis | 16 | 76 | 5 | 24 |
| Hydronephrosis | 75 | 83 | 15 | 17 |
| Hip dislocation | 20 | 87 | 3 | 13 |
| Limb deficiency | 7 | 78 | 2 | 22 |
| Diaphragmatic hernia | 7 | 100 | 0 | 0 |
| Gastroschisis | 6 | 75 | 2 | 25 |
| Trisomy 21 | 20 | 83 | 4 | 17 |
| Multiple defects | 95 | 86 | 16 | 14 |
a
Only displaying birth defects that had 5 or more cases, by infant.
b
Identifiable information retained (IIR) group consists of parents that did not choose to opt out.
c
De-identified information retained (DIIR) group consists of parents that either chose to opt out, or were treated as an opt-out case since the mailed opt-out package was not delivered.