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. Author manuscript; available in PMC: 2016 Jan 31.
Published in final edited form as: J Pediatr. 2014 Oct 30;166(2):444–50.e1. doi: 10.1016/j.jpeds.2014.09.039

Table I.

Context of Care: demographic and clinical characteristics

Characteristics Total, n (%), N = 2172 By SB type
P value*
MMC (n = 1763) Non-MMC (n = 409)
Demographic characteristics
 Age group, y
  Younger than 2 373 (17.2) 300 (17.0) 73 (17.8)
  2 to <5 346 (15.9) 265 (15.0) 81 (19.8)
  5 to <10 454 (20.9) 364 (20.6) 90 (22.0)
  10 to <13 252 (11.6) 207 (11.7) 45 (11.0)
  13 to <18 419 (19.3) 342 (19.4) 77 (18.8)
  18 to <22 210 (9.7) 179 (10.2) 31 (7.6)
  22 or older 118 (5.4) 106 (6.0) 12 (2.9) .0364
 Sex
  Female 1141 (52.5) 909 (51.6) 232 (56.7) .0618
 Race/ethnicity
  Non-Hispanic white 1377 (63.4) 1137 (64.5) 240 (58.7)
  Non-Hispanic black 144 (6.6) 128 (7.3) 16 (3.9)
  Hispanic or Latino 526 (24.2) 426 (24.2) 100 (24.4)
  Other 125 (5.8) 72 (4.1) 53 (13.0) <.0001
 Insurance (N = 2171)
  Any private 1010 (46.5) 788 (44.7) 222 (54.3)
  Nonprivate 1161 (53.5) 974 (55.3) 187 (45.7) .0005
 Site
  1 411 (18.9) 339 (19.2) 72 (17.6)
  2 271 (12.5) 233 (13.2) 38 (9.3)
  3 242 (11.1) 218 (12.4) 24 (5.9)
  4 247 (11.4) 201 (11.4) 46 (11.2)
  5 231 (10.6) 190 (10.8) 41 (10.0)
  6 255 (11.7) 175 (9.9) 80 (19.6)
  7 172 (7.9) 153 (8.7) 19 (4.6)
  8 196 (9.0) 132 (7.5) 64 (15.6)
  9 75 (3.5) 63 (3.6) 12 (2.9)
  10 72 (3.3) 59 (3.3) 13 (3.2) <.0001
 Education level
  Pre-elementary 857 (39.5) 676 (38.3) 181 (44.3)
  Primary/secondary 1205 (55.5) 993 (56.3) 212 (51.8)
  Technical school 8 (0.4) 7 (0.4) 1 (0.2)
  Some college 43 (2.0) 36 (2.0) 7 (1.7)
  College degree 7 (0.3) 6 (0.3) 1 (0.2)
  Advanced degree 4 (0.2) 2 (0.1) 2 (0.5)
  Other 48 (2.2) 43 (2.4) 5 (1.2) .1523
Clinical characteristics
 Mobility status age 2 and older (n = 1782)
  Community ambulators 961 (53.9) 651 (45.0) 310 (92.3)
  Household ambulators 147 (8.2) 140 (9.7) 7 (2.1)
  Nonfunctional ambulators 145 (8.1) 137 (9.5) 8 (2.4)
  Nonambulators 529 (29.7) 518 (35.8) 11 (3.3) <.0001
 Functional LOL
  Thoracic (flaccid lower extremities) 330 (15.2) 325 (18.4) 5 (1.2)
  High-lumbar (hip-flexion present) 211 (9.7) 204 (11.6) 7 (1.7)
  Mid-lumbar (knee extension present) 581 (26.7) 543 (30.8) 38 (9.3)
  Low-lumbar (foot dorsiflexion present) 393 (18.1) 343 (19.5) 50 (12.2)
  Sacral (foot plantar flexion present) 657 (30.2) 348 (19.7) 309 (75.6) <.0001
 Bowel function
  Impaired bowel function, total sample 1891 (87.1) 1618 (91.8) 273 (66.7) <.0001
  Impaired bowel function, ages 5 and older§ 1200 (82.6) 1059 (88.4) 141 (55.3) <.0001
 Bladder function
  Impaired bladder function, total Sample** 1989 (91.6) 1693 (96.0) 296 (72.4) <.0001
  Impaired bladder function, ages 5 and older§ 1299 (89.4) 1133 (94.6) 166 (65.1) <.0001

LOL, level of lesion.

*

P-value for difference between type of SB (MMC vs non-MMC).

LOL is collected for both right and left side of the body; n = 128 with differences by side of the body. Reported here is the side with the most severe impairment.

Individuals are classified as having impaired bowel function if they are have involuntary release of stool or use an intervention (bowel-management technique) to prevent involuntary release of stool.

§

Subsample of all participants ages 5 or older = 1453.

**

Individuals are classified as having impaired bladder function if they are have involuntary release of urine or use an intervention (bladder-management technique) to prevent involuntary release of urine.