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. 2015 Jan 28;23(9):1142–1150. doi: 10.1038/ejhg.2014.279

Table 4. Informed consent elementsa.

CGC Sequencing approach (targeted or broad) Distinction diagnostics − research Information sheet Distinction minors − adults Unsolicited findings Option ‘right-not-to-know'
1 Yes Yes Yes No Yes Yes
2 Yes No Yes No Yes No
3 Yes No Yes No Yes No
4 Yes Yes No Yes No No
5 Yes No Yes No Yes No
6 Yes Yes Yes No Yes No
7 Yes Yes No Yes No No
8 Yes Yes No Yes No No
a

Overview of the elements mentioned (‘yes') and not mentioned (‘no') in the informed consent forms of the various centers. Note, the informed consent procedures were under considerable debate during this study, and may thus have changed accordingly.