Table 1.

Demographic and Disease Variables

Adolescent Females
Age M (SD)	16.18 (1.53)
Ethnicity
Caucasian	81%
African American	7%
Hispanic or Latino	7%
Asian or Pacific Islander	2%
Biracial	3%
Diagnosis*
Pulmonary Condition (cystic fibrosis)	18% (n=12)
GI Condition (inflammatory bowel disease)	13% (n=8)
Rheumatologic Condition (arthritis)	32% (n=22)
Hematologic Condition	1% (n=1)
Cardiac Condition	28% (n=19)
Multiple Conditions	7% (n=5)

Female Caregivers
Age	M (SD) = 46.03 (9.39)
Ethnicity
Caucasian	85%
African American	6%
Hispanic or Latino	6%
Asian or Pacific Islander	0%
Biracial	3%
Mother Education (College degree or higher) % (n)	36% (35)
Family Income (Median category)	$80,000 – $90,000

Note

^*Diagnosis (missing = 1)