Table 1.

Demographic and clinical characteristics

Characteristic	Statistic
Female; n (%)	813 (76)
Age (years); mean ± SD	53.2 ± 11.9
18–24	12 (1 %)
35–44	59 (6 %)
45–54	346 (32 %)
55–64	281 (26 %)
≥65	210 (20 %)
Employment status; n (%)
Full time (>30 h/week)	256 (24 %)
Self-employed	62 (6 %)
Full-time student	131 (12 %)
Retired	239 (22 %)
Not able to work/disabled	283 (26 %)
Not currently employed	89 (8 %)
Time since diagnosis (years); mean ± SD	9.6 ± 6.3
Presence of another movement disorder; n (%)	393 (37)
Blepharospasm	84 (8)
Other dystonias (non-specified)	335 (31)
Hemifacial spasm	35 (3)