Table 1.

Lynch syndrome screening network database contents

De-identified patient code
Demographics
Age in years
Sex
Race/ethnicity
Insurance status
Previous LS-related cancer history
Cancer type
Age at diagnosis
Index cancer
Date of diagnosis
Cancer and specimen type
Stage
Pathological features
Tumor screening
Type (MSI, IHC, BRAF V600E, MLH1 promoter methylation)
Results
Genetic counseling
Completion status
Reasons for non-completion
Family cancer history
Amsterdam I, II or Bethesda criteria met
First and second degree relative cancer history
Genetic testing
Germline testing completed
Test results (gene and identified mutation)
Mutation testing in relatives of proband with LS
Number and degree of relationship
Test results