Table 1.
Endorseesa (N = 16)
|
General Sample (N = 186)
|
|||||
---|---|---|---|---|---|---|
Characteristic | X̄ | SD | Range | X̄ | SD | Range |
Caregiver age (years) | 49.4 | 3.05 | 45–53 | 50.48 | 6.29 | 30–69 |
Survivor age (years) | 18.18 | 5.69 | 14–34 | 20.52 | 5.28 | 14–39 |
Time since diagnosis (years) | 11.94 | 5.53 | 6–26 | 13.12 | 6.26 | 5–32 |
Characteristic | n | % | n | % |
---|---|---|---|---|
Survivor gender (male; endorsees only) | 5 | 46 | 105 | 57 |
Caregiver partnered | 11 | 69 | 146 | 79 |
Caregiver employed full-time | 7 | 44 | 88 | 47 |
Caregiver education | ||||
Some high school | – | – | 3 | 2 |
High school graduate | 5 | 31 | 53 | 28 |
Some college | 4 | 25 | 41 | 22 |
College graduate or higher | 7 | 44 | 89 | 48 |
Survivor education or work | ||||
In school | 12 | 75 | 117 | 63 |
Workingb | 4 | 25 | 78 | 42 |
Currently not in school or working | 3 | 19 | 33 | 18 |
Tumor type | ||||
Low-grade glioma | 8 | 50 | 94 | 51 |
Primitive neuroectodermal tumor | 5 | 31 | 51 | 27 |
Craniopharyngioma | – | – | 14 | 8 |
High-grade glioma | – | – | 7 | 4 |
Ependymoma | – | – | 5 | 3 |
Germ cell | 1 | 6 | 5 | 3 |
Choroid plexus | 1 | 6 | 4 | 2 |
Other | 1 | 6 | 6 | 3 |
Tumor location | ||||
Posterior fossa | 10 | 63 | 94 | 51 |
Cortical | 2 | 13 | 33 | 18 |
Sellar | – | – | 29 | 16 |
Pineal | 1 | 6 | 7 | 4 |
Thalamic | 2 | 13 | 6 | 3 |
Ventricle | 1 | 6 | 6 | 3 |
Brain stem | – | – | 5 | 3 |
Optic nerve | – | – | 4 | 2 |
Other | – | – | 2 | 1 |
Includes 5 caregivers and 11 survivors
Three survivor endorsees and 42 survivors from the general sample worked while in school.
Note. The characteristics for endorsees include summary information for all 16 caregivers and survivors unless otherwise indicated.
Note. Because of rounding, percentages may not total 100.