Table 1.
Characteristics of children with SCD and their interviewed caregivers
| Variables | Did not choose HU | Chose HU |
|---|---|---|
| Patients | n = 8 | n = 8 |
| Patient age (years) | ||
| Median | 13 | 8 |
| Range | 5–18 | 2–17 |
| Gender (n) | ||
| Female | 4 | 3 |
| Genotype (n) | ||
| SS | 5 | 8 |
| SC | 3 | 0 |
| Indication for HU therapy (n) | ||
| ACS only | 1 | 2 |
| Frequent VOC only | 3 | 1 |
| VOC and ACS | 4 | 5 |
| Caregivers | n = 10 | n = 9 |
| Caregiver age (years) | ||
| Median | 35.5 | 32 |
| Range | 26–67 | 24–45 |
| Caregiver gender (n) | ||
| Female | 8 | 7 |
| Caregiver relationship to patient (n) | ||
| Biological parent | 6 | 7 |
| Biological grandparent | 1 | 2 |
| Other (adoptive parent or family friend) | 3 | 0 |
| Caregiver education (n) | ||
| <12th grade | 0 | 0 |
| High school | 1 | 1 |
| Associates degree or finishing degree | 4 | 5 |
| Bachelors | 4 | 2 |
| Graduate degree | 0 | 1 |
| Did not disclose | 3 | 0 |
| Caregiver employed (n) | ||
| Yes | 5 | 8 |