Figure 1.

Recruitment, retention, and attrition of unaffected noncarriers, unaffected carriers, and affected carriers in the genetic test reporting and follow-up studies.

^a3 affected noncarriers who received genetic counseling and test results and who completed multiple assessments were excluded from analysis because there were too few participants to permit statistical analyses from which meaningful inferences or comparisons to other participant groups could be made.

^b3 unaffected noncarriers and 2 unaffected carriers completed an abbreviated version of the survey by telephone that did not include the perceived control ratings. Thus, the effective sample size for perceived control ratings at 2 years is 32 (56.1% of eligible participants).