Table 1.
Perinatal Health Framework for Women with Physical Disabilities: Individual, Mediating, Maternal and Infant Outcomes and Environmental Context
| Individual factors | Example |
|---|---|
| Demographic | Age Race/ethnicity Income Education Country of origin Marital status Sexual orientation Culture |
| Health condition | Primary disabling condition Co-morbid conditions (e.g. asthma or diabetes) Secondary conditions (e.g. pressure ulcers, UTIs) Stability of condition |
| Body structure and function | Structural anomalies (e.g. spinal cord injury, amputation) |
| Impairments | Limited mobility Limited dexterity |
| Genetic factors | Inheritable condition like spinal muscular atrophy, achondroplasia |
| Activities | Self-care including dressing, bathing, eating (ADLs and IADLs) |
| Participation | Employment Community and social interactions Intimate relationships |
| Mediating Factors | Example |
|---|---|
| Access to information and resources | Preconception counseling Prenatal education Assistive technology Access to information on pregnancy Financial support Transportation access Access to nutrition Personal assistance with mothering tasks |
| Health care-related factors | Physical, communication, programmatic and attitudinal barriers to health care Provider knowledge Health insurance status Reproductive care experiences Sexuality education |
| Psychosocial factors | Women's knowledge, beliefs and attitudes about childbearing and motherhood Self-efficacy Stress Depression/anxiety Risk for physical abuse |
| Social support | Family support Family and peer attitude towards pregnancy among women with physical disabilities Relationship with spouse/partner and peers |
| Maternal and Infant Outcomes | Example |
|---|---|
| Maternal outcomes | Maternal health Maternal well-being Maternal functioning Cesarean delivery |
| Infant outcomes | Low birth weight Preterm birth NICU admissions Congenital anomalies Clinical complications Maternal-infant bonding |
| Environmental Context | Example |
|---|---|
| Physical | Physical accessibility of woman's home and clinicians' office Accessibility of transportation |
| Social | Opportunities for intimate relationships Degree of social connectedness |
| Attitudinal | Attitudes of broader community towards pregnancy among women with physical disabilities |
| Legal/policy | Americans with Disabilities Act Social Security Act (Medicare, Medicaid, cash benefits) Affordable Care Act Maternal and child health policy |