Table 2.
Followback survey participants.
| Mailed out to | AMBER care bundle (n = 261) | Comparison (n = 221) | Combined (n = 482) |
|---|---|---|---|
| Completed and returned | 23% (n = 59) | 16% (n = 36) | 20% (n = 95) |
| Refused | 9% (n = 24) | 10% (n = 21) | 9% (n = 45) |
| Addressee not known | 13% (n = 34) | 10% (n = 21) | 11% (n = 55) |
| No response | 55% (n = 144) | 64% (n = 143) | 60% (n = 287) |
| Patient characteristics | AMBER care bundle (n = 59) | Comparison (n = 36) | Combined (n = 95) |
| Age (years) | |||
| Mean (range) | 73 (28–102) | 83 (61–95) | 77 (28–102) |
| Reason for admission | |||
| Pneumonia | 20% (n = 12) | 11% (n = 4) | 17% (n = 16) |
| Respiratory disease (COPD, bronchiectasis and pulmonary fibrosis) | 7% (n = 4) | 14% (n = 5) | 10% (n = 9) |
| Cancer (local and metastatic) | 24% (n = 14) | 11% (n = 4) | 19% (n = 18) |
| Sepsis (other than pneumonia) | 14% (n = 8) | 11% (n = 4) | 13% (n = 12) |
| MND, MS and neurodegenerative | 10% (n = 6) | 0 | 6% (n = 6) |
| Renal failure | 3% (n = 2) | 5% (n = 2) | 4% (n = 4) |
| Heart failure and acute coronary syndromes | 5% (n = 3) | 11% (n = 4) | 7% (n = 7) |
| Dementia | 2% (n = 1) | 3% (n = 1) | 2% (n = 2) |
| Stroke and subdural haemorrhage | 2% (n = 1) | 17% (n = 6) | 7% (n = 7) |
| Liver failure and GI disease | 10% (n = 6) | 0% | 6% (n = 6) |
| Other | 3% (n = 2) | 17% (n = 6) | 9% (n = 8) |
| Disease group | |||
| Cancer | 34% (20) | 25% (9) | 31% (29) |
| Non-cancer | 66% (39) | 75% (27) | 69% (66) |
| Gender | |||
| Male | 46% (n = 27) | 53% (n = 19) | 48% (n = 46) |
| Female | 54% (n = 32) | 47% (n = 17) | 52% (n = 49) |
| Ethnicity | |||
| White British/Other | 85% (n = 50) | 72% (n = 26) | 80% (n = 76) |
| Black African/Caribbean/Other | 5% (n = 3) | 14% (n = 5) | 9% (n = 8) |
| Asian | 5% (n = 3) | 3% (n = 1) | 4% (n = 4) |
| Other | 2% (n = 1) | 8% (n = 3) | 4% (n = 4) |
| Not completed | 3% (n = 2) | 3% (n = 1) | 3% (n = 3) |
| Next of kin or respondent characteristics | |||
| Gender | |||
| Male | 24% (n = 14) | 31% (n = 11) | 26% (n = 25) |
| Female | 76% (n = 45) | 67% (n = 24) | 73% (n = 69) |
| Not completed | 2% (n = 1) | 1% (n = 1) | |
| Age (years) | |||
| Mean | 60 (n = 58) | 65 (n = 32) | 62 (n = 90) |
| Range | 21–87 | 44–91 | 21–91 |
| Not completed | 1 | 4 | 5 |
| Ethnicity | |||
| White British/Other | 89% (n = 52) | 72% (26) | 82% (n = 78) |
| Black African/Caribbean/Other | 5% (n = 3) | 13% (5) | 9% (n = 8) |
| Asian | 0% (n = 0) | 3% (1) | 1% (n = 1) |
| Other | 3% (n = 2) | 6% (2) | 4% (n = 4) |
| Not completed | 3% (n = 2) | 6% (2) | 4% (n = 4) |
COPD: chronic obstructive pulmonary disease; MND: motor neuron disease; MS: multiple sclerosis; GI: gastrointestinal.