Table 1.
Proxy reported pain duration, intensity, and frequency of episodes by pain type in the previous 7 days.
| Pain Type | Number of Participants (n=) |
Median Duration |
Mean Duration (SD; range) |
Median Intensity |
Mean Intensity (SD; range) |
Median Episodes |
Mean Episodes (SD; range) |
Medication Administered (n=) |
|---|---|---|---|---|---|---|---|---|
| Gastrointestinal | 8 | 13.50 | 24.85(27.53; 0.33–72) | 6 | 5.88 (2.17); 3–9 | 2.5 | 3.87(4.26; 1–14) | 4 |
| Musculoskeletal | 5 | 84.00 | 84.07(83.91; 0.11–168) | 6 | 6.60 (1.82); 5–9 | 1 | 2.60(2.61; 1–7) | 2 |
| Seizure related | 5 | 3.00 | 9.70(12.16; 0.5–30) | 5 | 5.50 (2.52); 3–9 | 1 | 5.20(8.32; 1–20) | 3 |
| Everyday | 2 | 0.13 | 0.13(0.16; 0.02–0.25) | 4 | 4.00 (4.24); 1–7 | 1 | 1.00(0.00; 1–1) | 0 |
Pain duration reported in hours. Pain intensity scored 0–10.