Table 2.

Comparison between participants and population data of condition severity by health condition

AUTISM SPECTRUM DISORDER
Questionnaire	Participants			Australian source
Young person SDQ	n	Mean	SD	n	Mean	SD	p value1
Total score	116	17.6	6.1	29	18.4	5.6	0.47
Emotional symptoms	116	4.8	2.5	29	4.5	3.0	0.68
Conduct problems	116	3.0	2.2	29	2.8	1.7	0.47
Hyperactivity	116	5.5	2.4	29	5.9	2.0	0.39
Peer Problems	116	4.2	2.2	29	5.2	2.7	0.07
Prosocial	116	6.5	2.1	29	7.0	2.0	0.23
	Participants			SNAP source
Parent-reported SDQ	n	Mean	SD	n	Mean	SD	p value1
Total score	113	22.8	5.9	105	13.5	7.2	<0.001
Emotional symptoms	113	6.3	2.4	105	2.9	2.4	<0.001
Conduct problems	113	3.6	2.5	104	1.7	1.6	<0.001
Hyperactivity	113	6.7	2.5	105	4.8	2.8	<0.001
Peer Problems	113	6.2	2.2	105	4.1	3.1	<0.001
Prosocial	113	5.1	2.3	104	6.0	2.4	0.01
	Participants			SNAP source
SRS	n	Mean	SD	n	Mean	SD	p value1
Total score	114	117.2	29.7	71	90.3	27.3	<0.001
CEREBRAL PALSY
Questionnaire	Participantsa			Regional samples: NECCPS & NICPRb
GMFCS at age 5 years	n (%)			n (%)			p value2
I	25 (26)			95 (26)
II	42 (44)			159 (44)
III	16 (17)			59 (16)
IV	11 (11)			41 (11)
V	2 (2)			8 (2)
Total	96 (100)			362 (100)			0.99
DIABETES
Indicator	Participants			UK national datac			p value3
	n	Mean	SD	n	Mean	SD
HbA1c (mmol/mol)	150	72.5	18.6	11676	71.6	22.6	0.56
Age at diagnosis (years)	150	9.5	3.8	11676	9.0	3.8	0.10

¹Two sample t-test of difference in means between participants and population data

SD Standard Deviation

SDQ Strength and Difficulties Questionnaire

SRS Social Responsiveness Scale

SNAP Special Needs and Autism Project

^aData missing from one site

^bThose born in region, 1995–98, IQ > 50

²Chi-squared test of difference in GMFCS distribution between participants and population data

GMFCS Gross Motor Function Classification System

NECCPR North of England Collaborative Cerebral Palsy Survey

NICPR Northern Ireland Cerebral Palsy Register

^cData from UK National Paediatric Diabetes Audit, children aged 14–18 years [39]

³Two sample t-test of difference in means between participants and comparators