Table 3.
‘Mind the Gap’ scores of young people and parents by health condition
| Young people | Parents/carers | |||||||
|---|---|---|---|---|---|---|---|---|
| ASD | CP | Diabetes | ASD | CP | Diabetes | |||
| Median (IQR) | Median (IQR) | Median (IQR) | Median (IQR) | Median (IQR) | Median (IQR) | |||
| Ideal care | ||||||||
| Physical environment | 5.0 (4.4, 5.8) | 5.2 (4.4, 6.0) | 5.4 (4.6, 6.0) | 6.0 (5.2, 6.5) | 6.0 (5.0, 6.5) | 5.8 (5.2, 6.5) | ||
| Healthcare personnel | 5.9 (5.3, 6.6) | 5.9 (5.3, 6.5) | 6.0 (5.5, 6.5) | 6.8 (6.3, 6.9) | 6.5 (6.1, 6.8) | 6.6 (6.0, 6.9) | ||
| Care processes | 5.8 (4.8, 6.4) | 5.8 (4.8, 6.6) | 5.7 (4.6, 6.2) | 7.0 (6.6, 7.0) | 6.9 (6.4, 7.0) | 6.6 (6.0, 6.9) | ||
| Current care | ||||||||
| Physical environment | 4.2 (3.4, 5.0) | 4.0 (3.4, 5.0) | 4.6 (3.8, 5.0) | 3.8 (3.0, 4.8) | 3.7 (2.7, 4.5) | 4.2 (3.2, 5.0) | ||
| Healthcare personnel | 5.1 (4.3, 5.7) | 5.0 (4.1, 5.8) | 5.6 (4.7, 6.1) | 5.5 (4.4, 6.6) | 4.6 (3.6, 5.5) | 5.6 (4.6, 6.2) | ||
| Care processes | 4.6 (3.4, 5.4) | 4.4 (3.0, 5.6) | 4.6 (4.0, 5.6) | 4.6 (3.1, 5.8) | 3.6 (2.4, 5.0) | 5.1 (4.0, 5.9) | ||
| ‘Gap’ score | p value1 | p value1 | ||||||
| Physical environment | 0.8 (−0.2, 1.8) | 1.0 (−0.2, 2.0) | 0.8 (0.0, 1.8) | 0.79 | 1.8 (0.5, 3.0) | 2.0 (0.7 3.2) | 1.4 (0.3, 2.7) | 0.14 |
| Healthcare personnel | 0.6 (0.0, 1.5) | 0.4 (0.0, 1.4) | 0.4(−0.2, 1.1) | 0.12 | 0.6 (0.0, 2.1) | 1.6 (0.7, 2.8) | 0.8 (0.1, 1.6) | <0.001 |
| Care processes | 1.0 (0.0, 1.8) | 1.0 (0.0, 2.8) | 0.6 (0.0, 1.4) | 0.06 | 1.9 (0.6, 3.3) | 3.0 (1.1, 4.1) | 1.1 (0.3, 2.1) | <0.001 |
1Kruskal-Wallis test of differences in gap scores across long term health condition
IQR Inter-quartile range
ASD Autism Spectrum Disorder
CP Cerebral Palsy