Table 1.

Interview guide sample questions

Topic	Sample interview questions
Quality of care	Tell me about the healthcare your child received. Do you feel there were ever significant delays in the delivery of your child's care?
Impressions of treatment team	What did your child's treatment team do well? What could be improved?
Communication	Tell me about a time when your child's doctors gave you information about your child's condition. What was that like? Was there anything you disliked or found frustrating about your communications with your child's healthcare team?
Coping	Tell me what it was like for you, as a parent, to be with your child in the hospital. What were some coping strategies you used during your child's hospital stay?
Discharge planning/transition home	How did the transition home go for you? Was there anything that surprised you? Is there any specific information or training that would have been useful to you before your child was discharged from the hospital?
Rehabilitation	Has your child received regular follow-up care since he/she was discharged from the hospital?