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. 2015 Jul 30;3(3):198–212. doi: 10.1002/sm2.75

Red flags and selected clinician and patient resources for core domains of AYAC sexuality assessment

Core domain Key tips/red flags Resources for clinician Resources for patient
I. Socio-demographics
  • Inline graphic  Contextualize sexual impact as a function of socio-demographics (e.g., age, culture, family, single or couple)

  • Inline graphic  Consider financial factors and changes in living situation that impact sexuality (e.g., moving back home with parents)

  • Inline graphic  Assess and consider sexual orientation

  • Inline graphic  Use appropriate, non-heterosexist language to ensure cultural responsibility and competency

  • sm20003-0198-mu1.pngInline graphic  National LGBT Cancer Network [44].

II. Medical History
  • Inline graphic  Comprehensive inquiry of AYAC medical history (e.g., history of cancer diagnosis/recurrence, concomitant illnesses' treatment with medications)

  • Inline graphic  Examine sexuality within the context of patients' mental and physical health (e.g., ability to engage and meet daily activities)

  • Inline graphic  Consider HRQL

  • Inline graphic  Quality of Life-Cancers Survivors** [45] and Peds QL* [46]

  • Inline graphic  Functional Assessment of Cancer Therapy—General (FACT-G)** [47]

III. Fertility and STIs
  • Inline graphic  Review clinical notes/reports from fertility specialists

  • Inline graphic  Assess psychosocial impacts of loss/compromised fertility

  • Inline graphic  Consider desirability as a potential partner, grief concerning biological parenthood, low/poor self-esteem, threat to the formation/survival of couple relationships

  • Inline graphic  Referral to specialist to determine current reproductive functioning (if unknown)

  • Inline graphic  Educate about safe sex practices (e.g., contraception, STIs, HPV vaccination)

IV. Sexual Functioning
  • Inline graphic  Assess direct impacts of treatment (e.g., chemotherapy, surgery) on sexual functioning

  • Inline graphic  Special attention directed at negative impacts of treatments on genito-urinary, pelvic, or hormonal areas

  • Inline graphic  Consider common sexual complaints such as issues related to desire, arousal, orgasm, pain during intercourse

  • Inline graphic  Referral to specialists (e.g., gyno-oncologist, uro-oncologist) to rule out medical etiology of sexual complaints

  • Inline graphic[52],[53]

  • Inline graphic  Chapter 2 for an overview; Chapters 4–12 for treatment related side effects for specific cancer sites cancers [10]

  • Inline graphic  Range of Sexual Function and satisfaction scales 39–43

  • Inline graphic  Female Sexual Function Index** [54]

  • Inline graphic  UCLA Prostate Cancer Index** [55], and its longer version** [56], the Expanded Prostate Index Composite (EPIC) [57]

  • Inline graphic  the International Index of Erectile Function (IIEF)** [58] and its shorter version, the IIEF-5** [59]

  • Inline graphic  Sexual function—Vaginal changes Questionnaire (SVQ)** [60]

  • Inline graphic  Menopause Guidebook [61]

V. Sexual Coping Style
  • Inline graphic  Assess the short vs. long-term repercussions of sexual avoidance for AYAC

  • Inline graphic  Assess use of substances to alleviate sexual anxiety or enhance sexual performance

  • Inline graphic  Inform AYAC about the effect of drugs/alcohol on sexuality

VI. Body and Self Image
  • Inline graphic  Assess changes to physical appearance that can impact self-esteem, sexual assertiveness, sexual experimentation, and significant sexual/couple experience

  • Inline graphic  Assess AYACs' frame of mind during sex

  • Inline graphic  Inquire about “sexual hypervigilence” to any affected areas

  • Inline graphic  Body Image Scale [64]

  • Inline graphic  Sexuality Scale [65]

  • Inline graphic  Sexual Beliefs and Information Questionnaire (SBIQ) [66],

  • Inline graphic  Negative Thoughts During Sex Questionnaire (NTDSQ) [67]

VII. Sexual History and Dating/Couple Experience
  • Inline graphic  Assess if and how cancer impacted:

    • ○  Sexual experimentation and experiences (number and type of partners)

    • ○  First sexual encounter and anal/vaginal intercourse

    • ○  Identification of sexual preferences (partners and types of sexually arousing activities)

  • Inline graphic  For couples and partners, consider high risk factors for relationship loss or troubles

    • ○  Consider the length of relationship

    • ○  Consider that the partner may ill-equipped or not ready/willing to take on the responsibilities of the caregiver role

  • Inline graphic  Cancer rehabilitation evaluation system (CARES) Dating Subscale [68]

  • Inline graphic  Dyadic Adjustment Scale (DAS) [69],[70]

  • Inline graphic  Personal Assessment of Intimacy in Relationships (PAIR) [71]

*

Validated instrument using AYAC as the population sample

**

Validated instrument in oncology population

Cancer Blogs from AYAC, relevant to all seven core domains

The Huffington Post's hub of young adult cancer content, from recurring survivor blogs, to what's new in the medical world

Inline graphic, Represents a “red-flag” tip for the clinician to asses

Inline graphic, Represents a self-report questionnaire

sm20003-0198-mu1.pngInline graphic, Represents an online resource

Inline graphic, Represents a reading, e.g., a book, article or pamphlet