I. Socio-demographics |
Contextualize sexual impact as a function of socio-demographics (e.g., age, culture, family, single or couple)
Consider financial factors and changes in living situation that impact sexuality (e.g., moving back home with parents)
Assess and consider sexual orientation
Use appropriate, non-heterosexist language to ensure cultural responsibility and competency
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II. Medical History |
Comprehensive inquiry of AYAC medical history (e.g., history of cancer diagnosis/recurrence, concomitant illnesses' treatment with medications)
Examine sexuality within the context of patients' mental and physical health (e.g., ability to engage and meet daily activities)
Consider HRQL
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III. Fertility and STIs |
Review clinical notes/reports from fertility specialists
Assess psychosocial impacts of loss/compromised fertility
Consider desirability as a potential partner, grief concerning biological parenthood, low/poor self-esteem, threat to the formation/survival of couple relationships
Referral to specialist to determine current reproductive functioning (if unknown)
Educate about safe sex practices (e.g., contraception, STIs, HPV vaccination)
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IV. Sexual Functioning |
Assess direct impacts of treatment (e.g., chemotherapy, surgery) on sexual functioning
Special attention directed at negative impacts of treatments on genito-urinary, pelvic, or hormonal areas
Consider common sexual complaints such as issues related to desire, arousal, orgasm, pain during intercourse
Referral to specialists (e.g., gyno-oncologist, uro-oncologist) to rule out medical etiology of sexual complaints
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[52],[53]
Chapter 2 for an overview; Chapters 4–12 for treatment related side effects for specific cancer sites cancers [10]
Range of Sexual Function and satisfaction scales 39–43
Female Sexual Function Index**
[54]
UCLA Prostate Cancer Index**
[55], and its longer version**
[56], the Expanded Prostate Index Composite (EPIC) [57]
the International Index of Erectile Function (IIEF)**
[58] and its shorter version, the IIEF-5**
[59]
Sexual function—Vaginal changes Questionnaire (SVQ)**
[60]
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Menopause Guidebook [61]
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V. Sexual Coping Style |
Assess the short vs. long-term repercussions of sexual avoidance for AYAC
Assess use of substances to alleviate sexual anxiety or enhance sexual performance
Inform AYAC about the effect of drugs/alcohol on sexuality
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VI. Body and Self Image |
Assess changes to physical appearance that can impact self-esteem, sexual assertiveness, sexual experimentation, and significant sexual/couple experience
Assess AYACs' frame of mind during sex
Inquire about “sexual hypervigilence” to any affected areas
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Body Image Scale [64]
Sexuality Scale [65]
Sexual Beliefs and Information Questionnaire (SBIQ) [66],
Negative Thoughts During Sex Questionnaire (NTDSQ) [67]
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VII. Sexual History and Dating/Couple Experience |
-
Assess if and how cancer impacted:
○ Sexual experimentation and experiences (number and type of partners)
○ First sexual encounter and anal/vaginal intercourse
○ Identification of sexual preferences (partners and types of sexually arousing activities)
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For couples and partners, consider high risk factors for relationship loss or troubles
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Cancer rehabilitation evaluation system (CARES) Dating Subscale [68]
Dyadic Adjustment Scale (DAS) [69],[70]
Personal Assessment of Intimacy in Relationships (PAIR) [71]
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