Table 2.

Overview of participant demographics and treatment history

	Demographics				Treatment history
					Current drug management						Previous surgical procedures
Focus group	Participant	Sex	Age	Year of diagnosis	C	G	T	P	L	Other	GK	MD	PM
1	1	M	68	2009	+						X		X
	2	F	65	1998		O			O				X
2	3	F	+	1996	O						+
	4	F	79	1998									XX
	5	F	45	2004			O			Pa; I		X
	6	F	77	2007	O			O					XX
3	7	F	70	1997	O			O					XX
	8	M	66	2011							X	X
	9*	M	60	2011	+						+
	10	F	70	1999	+								X
	11*	F	79	1988	O	O					X		XXXXXX
4	12	F	54	2011									X
	13	F	70	2011							X		X
	14	M	67	2010							X		X
	15	F	72	2011									XX
	16	M	74	2007							+

Participant:

* = participant has multiple sclerosis

+ = participants did not want to provide this information

O = participant reported current medication at time of focus group

X = each ‘X’ represents completion of procedure. Multiple use indicates number of times procedure was completed

Medical management:

C carbamazepine, G gabapentin, T tramadol, P pregabalin, L lamotrigine, Pa paracetamol, I ibuprofen

Surgical management:

Gamma knife (GM) = stereotactic radiosurgery using the gamma knife; microvascular decompression (MD) = microvascular decompression involving a craniectomy; percutaneous methods (PM) = radiofrequency thermocoagulation, glycerol rhizolysis, balloon compression, or local avulsion and cryotherapy of the peripheral branches