Table 1.
Characteristics of Adult Men with Fragile X Syndrome (FXS) and Respondents by Age Group
| 18–22yrs N = 70 | 23–29 yrs N = 116 | 30–39 yrs N = 70 | 40–49 yrs N = 34 | F value/Chi-square | P-value | |
|---|---|---|---|---|---|---|
| Men with FXS | ||||||
| White (n, [%]) | 80 (92.0%) | 93 (93.0%) | 68 (97.1%) | 34 (100%) | 3.13 | .22 |
| Functional Skills (M, SD) | 117.94(33.62) | 129.10 (28.77) | 134.43 (31.08) | 131.15 (32.99) | 4.08 | .01 |
| Does not speak (n, [%]) | 16 (18.60%) | 10 (10.31%) | 7 (10.61%) | 2 (6.90%) | 4.38 | .22 |
| Health (M,SD) | 3.87 (0.54) | 3.54 (0.87) | 3.55 (0.67) | 3.32 (0.88) | 0.98 | .68 |
| Residence (n, [%]) | ||||||
| Alone/roommate | 0 (0%) | 5 (5.3%) | 4 (6.2%) | 12 (30.8%) | ||
| Respondent | 81 (92.0%) | 72 (76.6%) | 38 (59.4%) | 8 (20.5%) | ||
| Group home | 4 (4.5%) | 10 (10.6%) | 16 (25.0%) | 15 (38.5%) | ||
| Treatment center | 0 (0%) | 1 (1.1%) | 0 (0%) | 2 (5.1%) | ||
| Other | 3 (3.4%) | 6 (6.4%) | 6 (9.4%) | 2 (5.1%) | 92.34 | <.001 |
| Respondent | ||||||
| Gender (n, [%]) | ||||||
| Female | 64 (91.4%) | 107 (92.2%) | 62 (88.6%) | 30 (88.2%) | 3.61 | .80 |
| Age in yrs (M, SD) | 50.93 (7.83) | 55.34 (5.65) | 62.60 (4.63) | 72.39 (8.99) | 98.08 | <.001 |
| Education (n,[%]) | ||||||
| College degree | 60 (68.2%) | 68 (72.3%) | 44 (67.7%) | 23 (59.0%) | 2.28 | .52 |
| Residential Location (n,[%]) | ||||||
| Northeast, U.S. | 24 (27.3%) | 15 (16.0%) | 15(23.1%) | 5 (12.8%) | ||
| Midwest, U.S. | 23 (26.1%) | 30 (31.9%) | 15 (23.1%) | 14 (35.9%) | ||
| South, U.S. | 28 (31.8%) | 27 (28.7%) | 20 (30.8%) | 13 (33.3%) | ||
| West, U.S. | 10 (11.4%) | 19 (20.2%) | 12 (18.5%) | 4 (8.9%) | ||
| Outside of U.S. | 2 (2.1%) | 2 (2.1%) | 2 (3.1%) | 0 (0%) | ||
| Not reported | 1 (1.1%) | 1 (1.1%) | 1 (1.5%) | 3 (7.7%) | 17.65 | .28 |
| Relation (n, [%]) | ||||||
| Parent | 94 (98.1%) | 99 (99%) | 34 (100%) | 34 (100%) | ||
| Other relative or guardian | 1 (1.0%) | 1 (0.6%) | 0 (0.0%) | 0 (0.0%) | ||
| Co-Reside with Adult with FXS (n,[%]) | 64 (91.4%) | 106 (91.4%) | 43(61.4%) | 10 (29.4%) | 73.10 | <.001 |
| FXS status (n, [%]) | ||||||
| Premutation | 64 (72.7%) | 63 (67.0%) | 46 (70.8%) | 23 (59.0%) | ||
| Full mutation | 2 (2.3%) | 0 (0%) | 0 (0%) | 0 (0%) | ||
| Non-FX | 2 (2.2%) | 2 (2.2%) | 2 (3.0%) | 2 (5.1%) | ||
| Not tested | 19 (21.6%) | 29 (30.8%) | 17 (26.2%) | 14 (35.9%) | 8.88 | .43 |