Table 3.
Define the general characteristics of individual genetic results that should be offered | Define the circumstances under which family members should be offered | Define acceptable processes for identifying and contacting family members | Define the research participant's role in the process of offering genetic results to family members | |
---|---|---|---|---|
The REB should not be involved in the development of these policies | 1 (5%) | 0 | 1 (5%) | 0 |
The REB should provide input, but not have ultimate authority to determine these policies | 6 (27%) | 9 (41%) | 9 (41%) | 9 (41%) |
The REB should have ultimate authority to determine these policies | 9 (41%) | 8 (36%) | 7 (32%) | 8 (36%) |
Institutional policies/guidelines should not be developed; decisions on a case-by-case basis | 1 (5%) | 0 | 0 | 0 |
Unsure | 0 | 0 | 0 | 0 |
Missing | 5 (23%) | 5 (23%) | 5 (23%) | 5 (23%) |