Skip to main content
. Author manuscript; available in PMC: 2016 Oct 1.
Published in final edited form as: J Law Med Ethics. 2015 Fall;43(3):514–522. doi: 10.1111/jlme.12293

Table 3.

REB Chair attitudes to the REB role in developing various policies for the return of genomic results.

Define the general characteristics of individual genetic results that should be offered Define the circumstances under which family members should be offered Define acceptable processes for identifying and contacting family members Define the research participant's role in the process of offering genetic results to family members
The REB should not be involved in the development of these policies 1 (5%) 0 1 (5%) 0
The REB should provide input, but not have ultimate authority to determine these policies 6 (27%) 9 (41%) 9 (41%) 9 (41%)
The REB should have ultimate authority to determine these policies 9 (41%) 8 (36%) 7 (32%) 8 (36%)
Institutional policies/guidelines should not be developed; decisions on a case-by-case basis 1 (5%) 0 0 0
Unsure 0 0 0 0
Missing 5 (23%) 5 (23%) 5 (23%) 5 (23%)