Table 1.
Participating Subjective Cognitive Decline Initiative (SCD-I) working group studies
| Study name | Institutional affiliation | Country | Research environment | Approximate number of participants | Number of measures |
|---|---|---|---|---|---|
| AgeCoDe Study | University of Bonn and 5 other German universities | Germany | General practice registry-based | 3,327 | 2 |
| Alzheimer’s Disease Center Clinical Core and Center for Brain Health | New York University School of Medicine | United States | Volunteer | 525 | 1 |
| Alzheimer’s Disease Neuroimaging Initiative (ADNI) | Over 100 international affiliates: adcs.org/Research/ClinicalSite.aspx | United States, Canada, Australia, Germany, United Kingdom | Volunteer and memory clinic | 1,204 | 1 |
| Amsterdam Dementia Cohort | VU University Medical Center | Netherlands | Memory clinic | 1,244 | 2 |
| Australian Imaging Biomarkers and Lifestyle Flagship Study of Ageing (AIBL) | University of Melbourne | Australia | Volunteer and physician referred | 851 | 2 |
| Barcelona Group | IDIBAPS, Hospital Clinic, Barcelona | Spain | Volunteer and memory clinic | 400 | 1 |
| Bonn Memory Clinic | University of Bonn and the German Center for Neurodegenerative Diseases, Bonn | Germany | Memory clinic | 120 | 1 |
| Dartmouth-Indiana Longitudinal Cohort | Dartmouth Medical School, Indiana University School of Medicine | United States | Volunteer and physician referred | 269 | 8* |
| Einstein Aging Study | Albert Einstein College of Medicine | United States | Community-based | 2,500 | 7** |
| Harvard Aging Brain Study | Harvard Medical School, Brigham and Women’s Hospital and Massachusetts General Hospital | United States | Volunteer | 280 | 3 |
| IMAP Caen Group | Inserm, University and Hospital of Caen | France | Memory clinic | 86 | 1 |
| Leipzig Longitudinal Study of the Aged (LEILA 75+) | University of Leipzig | Germany | Population-based | 1,265 | 1 |
| Mayo Clinic Study of Aging (MCSA) | Mayo Clinic | United States | Population-based | 4,500 | 2 |
| Memory Clinic -Fundació ACE | Fundació ACE. Barcelona Alzheimer Treatment and Research Center | Spain | Community-based | 660 | 1 |
| PreAl Study | Hôpital de la Salpêtrière, AP-HP | France | Memory clinic | 180 | 1 |
| Sydney Memory and Ageing Study | University of New South Wales | Australia | Community-based | 873 | 3 |
| University of Pittsburgh Study/Monongahela-Youghiogheny Health Aging Team (MYHAT) | University of Pittsburgh | United States | Clinic-community volunteer sample and population-based | 2,100 | 3 |
| Vanderbilt Memory and Alzheimer’s Center (VMAC) | Vanderbilt University School of Medicine | United States | Memory clinic, physician referred, and community-based | 158 | 1 |
| Victoria Subjective Cognitive Decline Study (SCDS) | University of Victoria | Canada | Volunteer | 42 | 5 |
*
A subset of participants received all 8 questionnaires. The remaining participants received 5 questionnaires.
**
A subset of participants received all 7 questionnaires. The remaining participants received 3 questionnaires.