Table 2.

Importance of factors to opinions about whether results should be offered to the family members of a deceased participant in a general biobank (n=33)

	Not at all important		Somewhat important		Very important
	n	(%)	n	(%)	n	(%)
Statements in the consent form regarding whether or not individual genetic research results might be disclosed to family members	2	(6)	6	(18)	25	(76)
The level of clinical validity of the results (The accuracy with which the presence of a gene variant predicts the presence of a clinical condition or predisposition)	2	(6)	8	(24)	23	(70)
The level of clinical utility of the results (The availability and effectiveness of interventions aimed at avoiding the adverse clinical consequences of a gene variant)	3	(9)	8	(24)	21	(64)
The reproductive implications associated with the results (Results that may not affect the participants’ health but suggest risk for disease among offspring, e.g., carrier status)	3	(9)	15	(45)	15	(45)
The seriousness of the condition associated the results (The level of morbidity and mortality expected if the person develops the condition associated with the gene variant)	2	(6)	13	(39)	18	(55)
Whether or not the results were generated (or confirmed) in a CLIA-certified lab (Standards that apply to labs that report patient-specific results “for the purpose of providing information for the diagnosis, prevention, treatment of disease, or impairment of, or assessment of health”)	3	(9)	18	(55)	12	(36)

Percentages may not sum to 100% due to missing data