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. Author manuscript; available in PMC: 2016 Oct 1.
Published in final edited form as: J Law Med Ethics. 2015 Fall;43(3):545–551. doi: 10.1111/jlme.12297

Table 1.

Dimensions of the Family Systems Model

Model Characteristics Application to Cancer Application to Genetic Risk
Features of the Illness Type of cancer Type of genetic risk
Mode of onset Likelihood of developing disease
Phase of life cycle at cancer diagnosis Phase of life cycle at receipt of test results
Availability of therapy Availability of preventive or therapeutic options
Course and severity of disease Expected severity of disease
Time Phases of Illness Awareness of symptoms Awareness of familial risk
Diagnostic work up Information seeking
Diagnosis Testing decision
Treatment decision Adoption of screening, preventive options
Treatment phase Active surveillance
Adaptation to chronic phase Adaptation to genetic risk phase
Terminal phase Outcome(s) of genetic risk
Family System Variables Coping with cancer skills Coping with genetic risk skills
Patterns of communication about cancer Patterns of communication about genetic risk
Caregiving skills Family support structures
Family experience with cancer Family experience with genetic risk
Quality of relationships Quality of relationships
Adoption of new family roles Adoption of new risk identity
Family values and beliefs about cancer Family values and beliefs about genetics