Features of the Illness |
Type of cancer |
Type of genetic risk |
Mode of onset |
Likelihood of developing disease |
Phase of life cycle at cancer diagnosis |
Phase of life cycle at receipt of test results |
Availability of therapy |
Availability of preventive or therapeutic options |
Course and severity of disease |
Expected severity of disease |
Time Phases of Illness |
Awareness of symptoms |
Awareness of familial risk |
Diagnostic work up |
Information seeking |
Diagnosis |
Testing decision |
Treatment decision |
Adoption of screening, preventive options |
Treatment phase |
Active surveillance |
Adaptation to chronic phase |
Adaptation to genetic risk phase |
Terminal phase |
Outcome(s) of genetic risk |
Family System Variables |
Coping with cancer skills |
Coping with genetic risk skills |
Patterns of communication about cancer |
Patterns of communication about genetic risk |
Caregiving skills |
Family support structures |
Family experience with cancer |
Family experience with genetic risk |
Quality of relationships |
Quality of relationships |
Adoption of new family roles |
Adoption of new risk identity |
Family values and beliefs about cancer |
Family values and beliefs about genetics |