TABLE 4.
Hospital Resource Use and Interventions in the Terminal Admission for Children With LT-CCCs Who Died in Children’s Hospitals in 2012
| Type of LT-CCCa | Admitted Electively | Hospital Resource Use | Interventions | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| Hospital Days | ICU Days | Hospital Cost, $, in Thousands | Mechanical Ventilationb | Surgeryc | New Medical Technologyd | ||||||
| n | % | Median (IQR) | Median (IQR) | Median (IQR) | n | % | n | % | n | % | |
| Overall Cohort | 180 | 14.4 | 8 (2–29) | 3 (1–13) | 55 (19–184) | 946 | 75.6 | 453 | 36.2 | 67 | 5.4 |
| Hematologic/ Immunologic | 49 | 31.0 | 40 (12–78) | 8.5 (1–28) | 298 (78–623) | 123 | 77.9 | 89 | 56.3 | 10 | 6.3 |
| Metabolic | 57 | 24.8 | 26 (7–64) | 9.5 (2–26) | 165 (51–479) | 185 | 80.4 | 114 | 49.6 | 18 | 7.8 |
| Gastrointestinal | 15 | 23.8 | 25 (12–50) | 13 (1–23) | 196 (99–439) | 52 | 82.5 | 34 | 54.0 | 5 | 7.9 |
| Renal | 16 | 20.0 | 22 (5–47) | 11 (1–31) | 139 (31–386) | 63 | 78.8 | 38 | 47.5 | 9 | 11.3 |
| Respiratory | 8 | 8.9 | 19 (4–57) | 8 (1–30) | 140 (25–402) | 71 | 78.9 | 42 | 46.7 | 10 | 11.1 |
| Malignancy | 78 | 17.9 | 14 (4–36) | 2 (0–11) | 71 (22–238) | 232 | 53.3 | 154 | 35.4 | 18 | 4.1 |
| Congenital/ Genetic | 30 | 14.5 | 9 (2–31) | 4 (1–14) | 57 (19–184) | 171 | 82.6 | 70 | 33.8 | 12 | 5.8 |
| Cardiovascular | 83 | 17.0 | 8 (2–32) | 5 (1–17) | 69 (24–232) | 426 | 87.1 | 205 | 41.9 | 25 | 5.1 |
| Neuromuscular | 56 | 10.9 | 6 (2–20) | 4 (1–11) | 39 (16–118) | 408 | 79.4 | 155 | 30.2 | 32 | 6.2 |
a
Conditions are ranked in order from greatest to least hospital days.
b
Identified by ICD-9-CM procedure and CTC codes for mechanical ventilation or other specified ventilation assistance.
c
Identified by a CTC code for operating room services.
d
Identified by ICD-9-CM procedure codes for gastrostomy, tracheostomy, ventriculoperitoneal shunt, baclofen pump, and other technologies inserted in the terminal admission.