Table 4.
Fears and Worries of RB Survivors
| Variable | Survivors (n = 470) | Unilateral (n = 218) | Bilateral (n = 252) | P* |
|---|---|---|---|---|
| Concern about future health | < .01 | |||
| Very | 71 (15.5) | 19 (9.0) | 52 (21.1) | |
| Somewhat/concerned/not very | 351 (76.6) | 164 (77.7) | 187 (75.7) | |
| Not at all concerned | 36 (7.9) | 28 (13.2) | 8 (3.2) | |
| Concern about ability to have children | .26 | |||
| Very | 42 (9.2) | 16 (7.6) | 26 (10.7) | |
| Somewhat/concerned/not very | 111 (24.5) | 47 (22.3) | 64 (26.2) | |
| Not at all concerned | 302 (66.4) | 148 (70.1) | 154 (53.1) | |
| Concern about developing another cancer | < .01 | |||
| Very | 92 (20.1) | 24 (11.4) | 68 (25.7) | |
| Somewhat/concerned/not very | 323 (70.5) | 154 (73.0) | 169 (68.4) | |
| Not at all concerned | 43 (9.4) | 33 (15.6) | 10 (4.1) | |
| Worry about possibility of children getting RB | < .01 | |||
| Never/rarely | 203 (47.7) | 109 (55.9) | 94 (40.7) | |
| Sometimes/often | 223 (52.3) | 86 (44.1) | 137 (59.3) | |
| Feel guilty about possibility of passing on RB to children | < .01 | |||
| Never/rarely | 237 (55.5) | 122 (62.6) | 115 (49.6) | |
| Sometimes/often | 190 (44.5) | 73 (37.4) | 117 (50.4) | |
| Avoided getting pregnant because children might get RB | 161 (36.4) | 46 (22.7) | 115 (48.1) | < .01 |
| Genetic testing to find out if could pass on RB | 139 (33) | 52 (27.1) | 87 (37.9) | .06 |
| Perceived risk of having another diagnosis of cancer compared with others the same age and sex | < .01 | |||
| Much less/slightly less | 36 (7.9) | 25 (11.7) | 11 (4.5) | |
| About the same | 130 (28.4) | 95 (44.6) | 35 (14.3) | |
| Slightly more/much more | 292 (63.8) | 93 (43.7) | 199 (81.2) | |
| Perceived risk of having any serious health problem compared with others the same age and sex | < .01 | |||
| Much less/slightly less | 76 (16.5) | 48 (22.5) | 28 (11.4) | |
| About the same | 277 (60.4) | 129 (60.5) | 148 (60.2) | |
| Slightly more/much more | 106 (23.1) | 36 (16.9) | 70 (28.5) |
NOTE. Data are given as No. (%).
Abbreviation: RB, retinoblastoma.
*
P value comparing covariate differences between unilateral and bilateral RB survivors. Factors with missing values were not included.