Table 1.
Characteristics of survey respondents
| Respondents | |
|---|---|
| Type of participant, n (%), n = 515 | |
| Patient | 298 (57.8) |
| Family member | 174 (33.8) |
| Caregiver | 43 (8.3) |
| Sex, n (%), n = 519 | |
| Female | 323 (62.2) |
| Male | 196 (37.8) |
| Age group, n (%), n = 524 | |
| 25–34 years | 23 (4.4) |
| 35–44 years | 59 (11.3) |
| 45–54 years | 96 (18.3) |
| 55–64 years | 190 (36.3) |
| 65–74 years | 120 (22.9) |
| 75 years or older | 36 (6.9) |
| Median age at diagnosis, years (range) | 57 (20–83) |
| Type of amyloidosis, n (%), n = 484 | |
| AL amyloidosis | 347 (71.7) |
| AA amyloidosis | 23 (4.8) |
| Hereditary transthyretin-related amyloidosis | 35 (7.2) |
| Hereditary non–transthyretin-related amyloidosis | 6 (1.2) |
| Other | 25 (5.2) |
| Unknown | 48 (9.9) |
| Organ involvement, n (%), n = 469 | |
| Heart | 172 (36.7) |
| Kidneys | 132 (28.1) |
| Liver | 15 (3.2) |
| Gastrointestinal tract | 27 (5.8) |
| Nervous system | 26 (5.5) |
| Multiple | 97 (20.7) |
Please note that not all participants responded to all questions. 533 participants completed the survey, but the numbers in the table indicate those who answered each particular survey question
AA inflammatory, AL light chain