DOMAIN	ORIGINAL WORDING OF QUESTION	NUMBER REPORTING DIFFICULTY ANSWERING QUESTION	COMMENTS FROM ROUND 1 PARTICIPANTS (n=25)	REVISED WORDING OF QUESTION	COMMENTS FROM ROUND 2 PARTICIPANTS (n=10 ADDITIONAL PATIENTS)
Severity Stem	What was the severity of (your) [symptom] at its worst?	10/25	“Do you want to know how bad it is or how often it occurred?”	Rate your worst [symptom].	Acceptable as rewritten
			“Difficult to compute ‘at its worst.’ It often starts one way and ends another. Do you mean on a specific day?”
			“Tough when you have a lot of one symptom, but it isn’t that bad.” “Also difficult when you don’t have a symptom to report.”
			“At its worst – as compared to what?”
			“I didn’t read far enough to get to the ‘at its worst’ part so I didn’t factor that into my answers.”
Fatigue	Fatigue, tiredness, or lack of energy	3/25	Difficulty reading or understanding the word “fatigue.”	Tiredness, lack of energy, or fatigue	Acceptable as rewritten
Anxiety	Anxiety	2/25	Difficulty reading word “anxiety” or trouble understanding concept	Anxiety (worrying)	Acceptable as rewritten
Bladder Control	Loss of control of urine (leakage)	4/25	Difficulty understanding what control of urine meant	Leak urine/ urine leakage	Acceptable as rewritten