Detecting symptoms and need for supportive care
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Assessment of survivors’ symptoms
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Consulting survivor |
Verbal questioning (based on checklist or according to protocol) |
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Observing and physical examination (according to protocol) |
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Wait and see what symptoms survivor describes |
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Use of PROs (OncoQuest) |
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Consulting colleagues |
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Consulting patient information system |
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Barriers in determination
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Limited scope of issues being raised during consultation |
Limited consultation time |
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Limited skills or expertise of health care professional |
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Limited responsibility of health care professional |
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Do not wish to burden the survivor by asking about… |
Irrelevant symptoms |
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“Irreversible” symptoms caused by treatment |
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No complete picture of a survivors’ symptoms |
Patients do not mention all symptoms |
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Fragmentation in care |
Current referral to supportive care options
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Supportive care services referred
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Available services within the hospital |
Allied health services, ie, physical therapist, dietician |
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Services outside hospital |
Specialized cancer centers |
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Cancer rehabilitation program |
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Allied health services in the region |
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General practitioner |
Barriers in referral
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Lack of options |
Lack of overview of available and adequate supportive care |
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Practical barriers in referral |
Lack of time to encourage survivors to obtain supportive care |
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Referral to region complicated due to lack of expertise on HNC |
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Referral only possible through physician |
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No need of survivor to be referred |
Survivor is unwilling to be referred |
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Survivor already has adequate supportive care |
Expected added value of eHealth application in follow-up care for health care professionals
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Increases insight into symptoms
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Provides a complete picture of patients’ symptoms |
Provides insight into the interdependence of patients’ symptoms |
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Signal function: creates awareness of the severity of symptoms |
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In support of their own observation/impression of health care professional |
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By monitoring symptoms ability to serve as treatment outcome |
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Improved (preparation for) consultation |
Low threshold to speak up about specific issues/symptoms |
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Option to target questions regarding specific symptoms |
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Option to elaborate on and prioritize symptoms |
Personalized advice/information
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Provides tailored information |
More detailed information than provided by physician |
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Back up for advice provided by health care professional |
Supportive to information provided by health care professional |
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Platform to deliver additional care |
Informative support to self-management advice |
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Availability of physical therapy exercises |
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Increases insight into QOL domains |
Improved knowledge in QOL domains out of health care professionals’ expertise |
Insight into supportive care options |
Increased insight into supportive care options |
Additional service in follow-up care |
Showcase for hospital |